Elaine Buchhorn Cintra Damião

Família como categoria de análise e campo de investigação em enfermagem

The increasing information about family in nursing literature expresses the progress in this area of knowledge. The research contribution on family nursing has included the illness experience, and both the context of care and interventions. The increase of family research in nursing studies demands consideration regarding the research quality, in view of the complexity of the studies that deal with family. Researching family represents more than defining a unique group of study. The aim of this study was to discuss theoretical and methodological aspects which should be taken into account by the researchers in their work with families. The reflections and challenges when studying family and illness have been described in this work and represent our 10-year experience investigating families and illnesses in our research group.The increasing information about family in nursing literature expresses the progress in this area of knowledge. The research contribution on family nursing has included the illness experience, and both the context of care and interventions. The increase of family research in nursing studies demands consideration regarding the research quality, in view of the complexity of the studies that deal with family. Researching family represents more than defining a unique group of study. The aim of this study was to discuss theoretical and methodological aspects which should be taken into account by the researchers in their work with families. The reflections and challenges when studying family and illness have been described in this work and represent our 10year experience investigating families and illnesses in our research group.

Family as an analysis category and research field in nursing

The increasing information about family in nursing literature expresses the progress in this area of knowledge. The research contribution on family nursing has included the illness experience, and both the context of care and interventions. The increase of family research in nursing studies demands consideration regarding the research quality, in view of the complexity of the studies that deal with family. Researching family represents more than defining a unique group of study. The aim of this study was to discuss theoretical and methodological aspects which should be taken into account by the researchers in their work with families. The reflections and challenges when studying family and illness have been described in this work and represent our 10-year experience investigating families and illnesses in our research group.The increasing information about family in nursing literature expresses the progress in this area of knowledge. The research contribution on family nursing has included the illness experience, and both the context of care and interventions. The increase of family research in nursing studies demands consideration regarding the research quality, in view of the complexity of the studies that deal with family. Researching family represents more than defining a unique group of study. The aim of this study was to discuss theoretical and methodological aspects which should be taken into account by the researchers in their work with families. The reflections and challenges when studying family and illness have been described in this work and represent our 10year experience investigating families and illnesses in our research group.

Inventário de estratégias de enfrentamento: um referencial teórico

O estudo teve como objetivo identificar as estrategias de enfrentamento utilizadas por adolescentes na experiencia de ter diabetes mellitus tipo 1 (DM1). Trata-se de um estudo qualitativo, exploratorio-descritivo, que tem o Interacionismo Simbolico e o Inventario de Estrategias de Enfrentamento como referenciais teoricos e a Teoria Fundamentada nos Dados como o referencial metodologico. Participaram do estudo 10 adolescentes, de 12 a 18 anos, com DM1 diagnosticado ha pelo menos um ano. As estrategias de enfrentamento identificadas pertencem aos fatores: Confronto, Afastamento, Autocontrole, Suporte Social, Aceitacao de Responsabilidade, Fuga-Esquiva, Resolucao de Problemas, Reavaliacao Positiva. A identificacao das estrategias permitira que os enfermeiros proponham intervencoes que auxiliem o adolescente a conviver melhor com sua situacao de doenca.This study aimed to identify the coping strategies used by adolescents in his/her experience of having diabetes mellitus type 1 (DM 1). The research is a qualitative, exploratorydescriptive study. The Symbolic Interactionism and Ways of Coping Questionnaire were chosen as the theoretical frameworks and the Grounded Theory as the methodological one. Data were collected with 10 adolescents, 12 to 18 years-old, with DM1, diagnosed at least a year before. The coping strategies identified belong to the following scales of the Ways of Coping Questionnaire: Distancing, Escape-Avoidance, Social Support, Accepting Responsibility, Solving Problem and Positive Reappraisal. The identification of the adolescents coping strategies will enable nurses to propose interventions that really help the adolescent to live better with the illness.

Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases

Objetivos: realizar la adaptacion cultural del Family Management Measure para el idioma portugues de Brasil. Metodo: el metodo obedecio las recomendaciones internacionales para este tipo de estudio, compuesta por las siguientes etapas: traduccion del instrumento para la lengua portuguesa; obtencion del consenso de las versiones traducidas; evaluacion por el comite de especialistas; retro-traduccion y pre-prueba. Resultados: esas etapas permitieron el alcance de las equivalencias conceptuales de items, semantica, idiomaticas, operacionales y la validacion del contenido. Conclusion: el Family Management Measure se presenta adaptado para el idioma portugues de Brasil ahora denominado de Instrumento de Medida de Manejo Familiar.Objectives to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. Method the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. Results these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. Conclusion the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

Ways of coping inventory: a theoretical framework *

O estudo teve como objetivo identificar as estrategias de enfrentamento utilizadas por adolescentes na experiencia de ter diabetes mellitus tipo 1 (DM1). Trata-se de um estudo qualitativo, exploratorio-descritivo, que tem o Interacionismo Simbolico e o Inventario de Estrategias de Enfrentamento como referenciais teoricos e a Teoria Fundamentada nos Dados como o referencial metodologico. Participaram do estudo 10 adolescentes, de 12 a 18 anos, com DM1 diagnosticado ha pelo menos um ano. As estrategias de enfrentamento identificadas pertencem aos fatores: Confronto, Afastamento, Autocontrole, Suporte Social, Aceitacao de Responsabilidade, Fuga-Esquiva, Resolucao de Problemas, Reavaliacao Positiva. A identificacao das estrategias permitira que os enfermeiros proponham intervencoes que auxiliem o adolescente a conviver melhor com sua situacao de doenca.This study aimed to identify the coping strategies used by adolescents in his/her experience of having diabetes mellitus type 1 (DM 1). The research is a qualitative, exploratorydescriptive study. The Symbolic Interactionism and Ways of Coping Questionnaire were chosen as the theoretical frameworks and the Grounded Theory as the methodological one. Data were collected with 10 adolescents, 12 to 18 years-old, with DM1, diagnosed at least a year before. The coping strategies identified belong to the following scales of the Ways of Coping Questionnaire: Distancing, Escape-Avoidance, Social Support, Accepting Responsibility, Solving Problem and Positive Reappraisal. The identification of the adolescents coping strategies will enable nurses to propose interventions that really help the adolescent to live better with the illness.

Living with pain: the experience of children and adolescents in palliative care

El estudio tuvo como objetivo conocer la experiencia de ninos y adolescentes en cuidados paliativos en el manejo diario del dolor. La investigacion cualitativa fue realizada con entrevistas semi-estructuradas con seis ninos entre siete y 17 anos. La teoria del Desarrollo cognitivo de Piaget fue utilizada como Marco teorico y la Historia Oral como Referencial Metodologico. Cuatro temas fueron encontrados: describiendo el dolor; buscando una vida mas proxima de la normalidad, a pesar del dolor y la enfermedad; utilizando varias alternativas para el control del dolor y viviendo la autoimagen perjudicada. A pesar del dolor ser un agente limitante en la vida de los ninos y adolescentes, verificamos que enfrentaban el dolor diariamente y, que asi mismo, tenian vida ademas del dolor y la enfermedad. Adicionamos, aun, la importancia de los enfermeros comprender que el eficaz manejo del dolor es esencial para una vida mas proxima de la normalidad, reduciendo su sufrimiento.

Vivenciando a dor: a experiência de crianças e adolescentes em cuidados paliativos

El estudio tuvo como objetivo conocer la experiencia de ninos y adolescentes en cuidados paliativos en el manejo diario del dolor. La investigacion cualitativa fue realizada con entrevistas semi-estructuradas con seis ninos entre siete y 17 anos. La teoria del Desarrollo cognitivo de Piaget fue utilizada como Marco teorico y la Historia Oral como Referencial Metodologico. Cuatro temas fueron encontrados: describiendo el dolor; buscando una vida mas proxima de la normalidad, a pesar del dolor y la enfermedad; utilizando varias alternativas para el control del dolor y viviendo la autoimagen perjudicada. A pesar del dolor ser un agente limitante en la vida de los ninos y adolescentes, verificamos que enfrentaban el dolor diariamente y, que asi mismo, tenian vida ademas del dolor y la enfermedad. Adicionamos, aun, la importancia de los enfermeros comprender que el eficaz manejo del dolor es esencial para una vida mas proxima de la normalidad, reduciendo su sufrimiento.

Influence of Therapeutic Play on the anxiety of hospitalized school-age children: Clinical trial

OBJECTIVE To evaluate the effects of Dramatic Therapeutic Play (DTP) technique on the degree of anxiety in hospitalized school-age children. METHOD Randomized clinical trial performed in two hospitals ofSão Paulo, between May and October 2015. The intervention consisted of the application of DTP and the outcome was evaluated through the Child Drawing: Hospital (CD: H) instrument. The Wilcoxon-Mann Whitney, Corrected t, Fishers exact and Chi-square tests were used in the analysis. Statistical significance was set at 5%. RESULTS In all, 28 children participated in the study. The majority of children (75%) had a low anxiety score, with a mean CD: H score of 73.9 and 69.4 in the intervention and control groups respectively, and with no significant difference. CONCLUSION Children submitted to DTP had the same degree of anxiety as those in the control group. However, it is suggested that new studies be performed with a larger number of children in different hospitalization scenarios.

Adaptação cultural do Family Management Measure para famílias de crianças e adolescentes portadores de doenças crônicas

Objetivos: realizar la adaptacion cultural del Family Management Measure para el idioma portugues de Brasil. Metodo: el metodo obedecio las recomendaciones internacionales para este tipo de estudio, compuesta por las siguientes etapas: traduccion del instrumento para la lengua portuguesa; obtencion del consenso de las versiones traducidas; evaluacion por el comite de especialistas; retro-traduccion y pre-prueba. Resultados: esas etapas permitieron el alcance de las equivalencias conceptuales de items, semantica, idiomaticas, operacionales y la validacion del contenido. Conclusion: el Family Management Measure se presenta adaptado para el idioma portugues de Brasil ahora denominado de Instrumento de Medida de Manejo Familiar.Objectives to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. Method the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. Results these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. Conclusion the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

Family management styles: a possibility of evaluation in pediatric liver transplant

RESuMO Objetivo: Identificar os estilos de manejo familiar durante a experiencia do transplante hepatico da crianca, de acordo com o Family Management Style Framework. Metodos: Estudo descritivo, com abordagem qualitativa, realizado mediante uma analise secundaria de nove entrevistas semiestruturadas, previamente coletadas com oito familias que tiveram uma crianca que atravessava a experiencia de transplante hepatico. Resultados: Pela analise, foi possivel identificar cinco estilos de manejo: familia ajustada, familia em adaptacao, familia lutando, familia em conflito e familia em espera. Conclusao: O modelo mostrou-se util na avaliacao de familias no contexto do transplante pediatrico e seu uso e encorajado neste e em outros cenarios de doenca cronica. Descritores: Familia; Transplante; Enfermagem pediatricaObjective: To identify the styles of family management during the experience of liver transplantation of a child, according to the Family Management Style Framework. Methods: A descriptive study with a qualitative approach, conducted by means of a secondary analysis of nine semi-structured interviews previously collected with eight families who had a child who experienced a liver transplantation. Results: From the analysis, it was possible to identify five styles of management: adjusted family, family in adaptation, struggling family, family in conflict and family in waiting. Conclusion: The model proved useful in assessing families in the context of pediatric transplant and its use is encouraged in this and other scenarios of chronic disease.