Fernanda Lais Fengler

Adaptation and validation of the Caregiver Burden Inventory for use with caregivers of elderly individuals

OBJECTIVE: to adapt and validate the Caregiver Burden Inventory for use with caregivers of older adults in Brazil. METHOD: methodological study involving initial translation, synthesis of translations, back translation, expert committee review, pre-testing, submission of the final version to the original authors, and assessment of the inventorys psychometric properties. The inventory assesses five dimensions of caregiver burden: time-dependence, developmental, physical, social and emotional dimensions. RESULTS: a total of 120 family caregivers took part in the study. All care-receivers were older adults dependent on assistance to perform activities of daily living, and lived in the central region of the city of Porto Alegre, RS, Brasil. Cronbachs alpha value for the inventory was 0.936, and the Pearson correlation coefficient for the relationship between the scores obtained on the Caregiver Burden Inventory and the Burden Interview was 0.814. The intraclass correlation coefficient was 0.941, and the value of Students T-test comparing test and retest scores was 0.792. CONCLUSION: the instrument presented adequate reliability and the suitability of its items and factors was confirmed in this study.en Brasil” presentada en la Universidade Federal do Rio Grande do Sul, Porto Alegre, RS, Brasil. Apoyo financiero del Fundo de Incentivo a Pesquisa e Eventos (FIPE) / Hospital de Clinicas de Porto Alegre (HCPA), Brasil, proceso no 13-0500, Coordenacao de Aperfeicoamento de Pessoal de Nivel Superior (CAPES), Brasil, proceso no 942309, y Fundacao de Amparo a Pesquisa do Estado do Rio Grande do Sul (FAPERGS), Brasil, proceso no 20794.

Adaptación y validación del Inventario de Sobrecarga del Cuidador para uso en cuidadores de ancianos

OBJECTIVE: to adapt and validate the Caregiver Burden Inventory for use with caregivers of older adults in Brazil. METHOD: methodological study involving initial translation, synthesis of translations, back translation, expert committee review, pre-testing, submission of the final version to the original authors, and assessment of the inventorys psychometric properties. The inventory assesses five dimensions of caregiver burden: time-dependence, developmental, physical, social and emotional dimensions. RESULTS: a total of 120 family caregivers took part in the study. All care-receivers were older adults dependent on assistance to perform activities of daily living, and lived in the central region of the city of Porto Alegre, RS, Brasil. Cronbachs alpha value for the inventory was 0.936, and the Pearson correlation coefficient for the relationship between the scores obtained on the Caregiver Burden Inventory and the Burden Interview was 0.814. The intraclass correlation coefficient was 0.941, and the value of Students T-test comparing test and retest scores was 0.792. CONCLUSION: the instrument presented adequate reliability and the suitability of its items and factors was confirmed in this study.en Brasil” presentada en la Universidade Federal do Rio Grande do Sul, Porto Alegre, RS, Brasil. Apoyo financiero del Fundo de Incentivo a Pesquisa e Eventos (FIPE) / Hospital de Clinicas de Porto Alegre (HCPA), Brasil, proceso no 13-0500, Coordenacao de Aperfeicoamento de Pessoal de Nivel Superior (CAPES), Brasil, proceso no 942309, y Fundacao de Amparo a Pesquisa do Estado do Rio Grande do Sul (FAPERGS), Brasil, proceso no 20794.

Elderly families of South of Brazil in the Health Strategy

OBJECTIVE to characterize families and health status of the elderly in the Family Health Strategy and to verify the association of family composition with sociodemographic characteristics and health of the elderly. METHOD population-based study with 215 families and 266 elderly, linked to the Family Health Strategy from a city of Rio Grande do Sul state. RESULTS there was predominance of nuclear family composition, considered as the main source of informal support, families of female elderly (62.6%) and cardiovascular complication. The nuclear structure was significantly associated with female gender (PR = 0.77; p = 0.025) and smoking (PR = 1.35; p = 0.009). CONCLUSION the results reinforce the need to maintain a network of formal and informal support to the elderly and their families to preserve the independence or to postpone the decline in functional capacity.

Needs of family caregivers in home care for older adults

Objetivo: descubrir las necesidades sentidas y normativas de los cuidadores primarios familiares en la prestacion de apoyo instrumental a ancianos registrados en un Programa de Atencion Domiciliaria en una Unidad Basica de Salud en el sur de Brasil. Metodos: usando la Taxonomia de Necesidades de Bradshaw para explorar las necesidades sentidas (necesidades declaradas) y normativas (definidas por profesionales), fue desarrollado un estudio exploratorio mixto en tres etapas: Etapa descriptiva cuantitativa, involucrando 39 ancianos y sus cuidadores, mediante una hoja de datos basada en el archivo del paciente; Etapa exploratoria cualitativa, basada en entrevistas con 21 cuidadores, analizadas mediante el analisis de contenido; Observacion sistematica, aplicando un manual de observacion a 16 cuidadores, con analisis estadistico descriptivo. Resultados: las necesidades sentidas estaban relacionadas a informaciones sobre actividades de apoyo instrumental y aspectos subjetivos de la atencion. Los cuidadores presentaron mayor numero de necesidades normativas asociadas al cuidado con medicaciones. Conclusion: comprender las necesidades de los cuidadores permite a los enfermeros planificar intervenciones basadas en sus particularidades.

Famílias de idosos na Estratégia de Saúde no Sul do Brasil

OBJECTIVE to characterize families and health status of the elderly in the Family Health Strategy and to verify the association of family composition with sociodemographic characteristics and health of the elderly. METHOD population-based study with 215 families and 266 elderly, linked to the Family Health Strategy from a city of Rio Grande do Sul state. RESULTS there was predominance of nuclear family composition, considered as the main source of informal support, families of female elderly (62.6%) and cardiovascular complication. The nuclear structure was significantly associated with female gender (PR = 0.77; p = 0.025) and smoking (PR = 1.35; p = 0.009). CONCLUSION the results reinforce the need to maintain a network of formal and informal support to the elderly and their families to preserve the independence or to postpone the decline in functional capacity.

Necessidades dos cuidadores familiares na atenção domiciliar a idosos

Objetivo: descubrir las necesidades sentidas y normativas de los cuidadores primarios familiares en la prestacion de apoyo instrumental a ancianos registrados en un Programa de Atencion Domiciliaria en una Unidad Basica de Salud en el sur de Brasil. Metodos: usando la Taxonomia de Necesidades de Bradshaw para explorar las necesidades sentidas (necesidades declaradas) y normativas (definidas por profesionales), fue desarrollado un estudio exploratorio mixto en tres etapas: Etapa descriptiva cuantitativa, involucrando 39 ancianos y sus cuidadores, mediante una hoja de datos basada en el archivo del paciente; Etapa exploratoria cualitativa, basada en entrevistas con 21 cuidadores, analizadas mediante el analisis de contenido; Observacion sistematica, aplicando un manual de observacion a 16 cuidadores, con analisis estadistico descriptivo. Resultados: las necesidades sentidas estaban relacionadas a informaciones sobre actividades de apoyo instrumental y aspectos subjetivos de la atencion. Los cuidadores presentaron mayor numero de necesidades normativas asociadas al cuidado con medicaciones. Conclusion: comprender las necesidades de los cuidadores permite a los enfermeros planificar intervenciones basadas en sus particularidades.

Necesidades de los cuidadores familiares en la atención domiciliaria a ancianos

Objetivo: descubrir las necesidades sentidas y normativas de los cuidadores primarios familiares en la prestacion de apoyo instrumental a ancianos registrados en un Programa de Atencion Domiciliaria en una Unidad Basica de Salud en el sur de Brasil. Metodos: usando la Taxonomia de Necesidades de Bradshaw para explorar las necesidades sentidas (necesidades declaradas) y normativas (definidas por profesionales), fue desarrollado un estudio exploratorio mixto en tres etapas: Etapa descriptiva cuantitativa, involucrando 39 ancianos y sus cuidadores, mediante una hoja de datos basada en el archivo del paciente; Etapa exploratoria cualitativa, basada en entrevistas con 21 cuidadores, analizadas mediante el analisis de contenido; Observacion sistematica, aplicando un manual de observacion a 16 cuidadores, con analisis estadistico descriptivo. Resultados: las necesidades sentidas estaban relacionadas a informaciones sobre actividades de apoyo instrumental y aspectos subjetivos de la atencion. Los cuidadores presentaron mayor numero de necesidades normativas asociadas al cuidado con medicaciones. Conclusion: comprender las necesidades de los cuidadores permite a los enfermeros planificar intervenciones basadas en sus particularidades.

Associação entre responsabilidade filial no cuidado aos pais e sobrecarga dos cuidadores

Objective: To analyze the association between filial responsibility and the overload of the children when caring for their older parents. Method: Cross-sectional study with 100 caregiver children of older adults. Filial liability was assessed by the attitudes of the responsible child (scale of expectation and filial duty) and by care behaviors (assistance in activities of daily living, emotional and financial support, and keeping company). The overload was assessed by the Caregiver Burden Inventory. To assess the associations, the correlation coefficients of Pearson and Spearman, Kruskal-Wallis Test, and Mann-Whitney were employed. Variables that presented p-value<0.20 in the bivariate analysis were inserted in a multivariate linear regression model. Results: The factors associated with overload were: formal employment (p=0.002), feelings regarding family life (p<0.001), financial support (p=0.027), and assistance with Activities of Daily Living (ADLs) (p<0.001). Conclusion: Children who were more involved with the ADLs and provided financial support showed higher levels of overload. Objetivo: Analisar a associação entre a responsabilidade filial e a sobrecarga dos filhos cuidadores de pessoas idosas. Método: Estudo transversal com 100 filhos cuidadores de pessoas idosas. A responsabilidade filial foi avaliada pelas atitudes de responsabilidade filial (escala de expectativa e dever filial) e pelos comportamentos de cuidar (auxílio nas atividades de vida diária, apoio emocional, financeiro e companhia). A sobrecarga foi avaliada pelo Inventário de Sobrecarga do Cuidador. Para avaliar as associações utilizaram-se os coeficientes de correlação de Pearson e Spearman, Teste de Kruskal-Wallis e Mann-whitney. Variáveis que apresentaram valor de p<0,20 na análise bivariada foram inseridas em um modelo multivariado de regressão linear. Resultados: Os fatores associados com a sobrecarga foram: emprego formal (p=0,002), sentimentos na vida familiar (p<0,001), apoio financeiro (p=0,027) e ajuda nas Atividades da Vida Diária (AVDs) (p<0,001). Conclusão: Os filhos que mais auxiliavam nas AVDs e prestavam apoio financeiro apresentaram maiores níveis de sobrecarga.Objective: To analyze the association between filial responsibility and the overload of the children when caring for their older parents. Method: Cross-sectional study with 100 caregiver children of older adults. Filial liability was assessed by the attitudes of the responsible child (scale of expectation and filial duty) and by care behaviors (assistance in activities of daily living, emotional and financial support, and keeping company). The overload was assessed by the Caregiver Burden Inventory. To assess the associations, the correlation coefficients of Pearson and Spearman, Kruskal-Wallis Test, and Mann-Whitney were employed. Variables that presented p-value<0.20 in the bivariate analysis were inserted in a multivariate linear regression model. Results: The factors associated with overload were: formal employment (p=0.002), feelings regarding family life (p<0.001), financial support (p=0.027), and assistance with Activities of Daily Living (ADLs) (p<0.001). Conclusion: Children who were more involved with the ADLs and provided financial support showed higher levels of overload. Objetivo: Analisar a associacao entre a responsabilidade filial e a sobrecarga dos filhos cuidadores de pessoas idosas. Metodo: Estudo transversal com 100 filhos cuidadores de pessoas idosas. A responsabilidade filial foi avaliada pelas atitudes de responsabilidade filial (escala de expectativa e dever filial) e pelos comportamentos de cuidar (auxilio nas atividades de vida diaria, apoio emocional, financeiro e companhia). A sobrecarga foi avaliada pelo Inventario de Sobrecarga do Cuidador. Para avaliar as associacoes utilizaram-se os coeficientes de correlacao de Pearson e Spearman, Teste de Kruskal-Wallis e Mann-whitney. Variaveis que apresentaram valor de p<0,20 na analise bivariada foram inseridas em um modelo multivariado de regressao linear. Resultados: Os fatores associados com a sobrecarga foram: emprego formal (p=0,002), sentimentos na vida familiar (p<0,001), apoio financeiro (p=0,027) e ajuda nas Atividades da Vida Diaria (AVDs) (p<0,001). Conclusao: Os filhos que mais auxiliavam nas AVDs e prestavam apoio financeiro apresentaram maiores niveis de sobrecarga.

Adaptação e validação do Inventário de Sobrecarga do Cuidador para uso em cuidadores de idosos

OBJECTIVE: to adapt and validate the Caregiver Burden Inventory for use with caregivers of older adults in Brazil. METHOD: methodological study involving initial translation, synthesis of translations, back translation, expert committee review, pre-testing, submission of the final version to the original authors, and assessment of the inventorys psychometric properties. The inventory assesses five dimensions of caregiver burden: time-dependence, developmental, physical, social and emotional dimensions. RESULTS: a total of 120 family caregivers took part in the study. All care-receivers were older adults dependent on assistance to perform activities of daily living, and lived in the central region of the city of Porto Alegre, RS, Brasil. Cronbachs alpha value for the inventory was 0.936, and the Pearson correlation coefficient for the relationship between the scores obtained on the Caregiver Burden Inventory and the Burden Interview was 0.814. The intraclass correlation coefficient was 0.941, and the value of Students T-test comparing test and retest scores was 0.792. CONCLUSION: the instrument presented adequate reliability and the suitability of its items and factors was confirmed in this study.en Brasil” presentada en la Universidade Federal do Rio Grande do Sul, Porto Alegre, RS, Brasil. Apoyo financiero del Fundo de Incentivo a Pesquisa e Eventos (FIPE) / Hospital de Clinicas de Porto Alegre (HCPA), Brasil, proceso no 13-0500, Coordenacao de Aperfeicoamento de Pessoal de Nivel Superior (CAPES), Brasil, proceso no 942309, y Fundacao de Amparo a Pesquisa do Estado do Rio Grande do Sul (FAPERGS), Brasil, proceso no 20794.

Care demands regarding home-care service: a descriptive study

Objetivo: caracterizar o perfil dos usuarios adultos acompanhados pelo Programa de Atencao Domiciliar do Grupo Hospitalar Conceicao (PAD/GHC) e suas demandas de enfermagem. Metodo: estudo exploratorio descritivo com coleta de dados retrospectiva. Resultados: Entre os 826 usuarios adultos acompanhados pelo PAD/GHC (mediana de acompanhamento de 21 dias e de cinco visitas), a maioria era do sexo feminino (53,9%) e com idade superior a 65 anos (50,6%), sendo as principais patologias tromboembolismo (10,9%) e acidente vascular encefalico (10,3%). As demandas centrais de cuidado de enfermagem foram realizacao de curativos (32,4%) e monitoramento da glicemia capilar (19,7%). Discussao: a prevalencia de idosos na amostra pode ser justificada pelo envelhecimento populacional. Esse dado, conjuntamente com patologias associadas a maior dependencia fisica, pode justificar a necessidade por cuidados de enfermagem especificos. Conclusao: a caracterizacao dos usuarios podera contribuir com a avaliacao da complexidade do cuidado domiciliar e oportunizar melhor orientacao do atendimento em residencias.