Johannes Jungbauer

[How do mothers and fathers suffering from schizophrenia experience their parenthood? Results from an in-depth interview study].

OBJECTIVE This study aimed at investigating the experience of parenthood in schizophrenia patients with young children and their needs for assistance. METHODS 26 interviews with mothers and fathers suffering from schizophrenia/schizo-affective disorder were examined using content analysis. RESULTS The study participants experience their parental role ambivalent, as resource and distress. Most patients are aware oft the fact that, at times, their parental competence is restricted, and they need external assistance. Nevertheless, they assess corresponding help offers sceptically or reject them in many cases. Often, they are afraid of losing their children or got already negative experience in this regard. CONCLUSIONS Parents suffering from schizophrenia as well as their children need adequate counselling and assistance offers considering their specific requirements.

Lebenszufriedenheit und subjektive Relevanz von Lebensbereichen bei schizophren Erkrankten

OBJECTIVE The aim is to analyze determinants of subjective quality of life in schizophrenia patients. METHODS Life satisfaction and subjective importance of life domains were assessed in 107 patients (FLZ (M)) and compared with the general population (n = 2974). RESULTS Schizophrenia patients experience lower levels of life satisfaction as well as less meaningfulness in all life domains. According to the range-of-affect hypothesis, patients with low importance ratings judged their life satisfaction more homogenously. While the presence of a partnership increases life satisfaction, parenthood has only indirect influences on satisfaction. CONCLUSION Psychiatrists should not only explore life satisfaction, but also the importance of different life domains and the patients family relations. Supporting beneficial family relations can increase the quality of life in schizophrenia patients.Objective: The aim is to analyze determinants of subjective quality of life in schizophrenia patients. Methods: Life satisfaction and subjective importance of life domains were assessed in 107 patients (FLZ M ) and compared with the general population (n = 2974). Results: Schizophrenia patients experience lower levels of life satisfaction as well as less meaningfulness in all life domains. According to the range-of-affect hypothesis, patients with low importance ratings judged their life satisfaction more homogenously. While the presence of a partnership increases life satisfaction, parenthood has only indirect influences on satisfaction. Conclusion: Psychiatrists should not only explore life satisfaction, but also the importance of different life domains and the patients family relations. Supporting beneficial family relations can increase the quality of life in schizophrenia patients.

Entwicklungsprobleme bei jungen Erwachsenen mit einer psychischen Erkrankung: Ergebnisse einer qualitativen Interviewstudie

OBJECTIVE This study aimed at investigating the impact of mental illness on the general psycho-social development of young adults. METHODS Results from an in-depth interview study with 16 young adults (20 to 31 years old) suffering from mental illness are presented. Particularly, illness-related issues were explored from the perspective of developmental psychology. RESULTS Coping with typical developmental tasks of early adulthood (e. g. autonomy; intimate relationships; vocational training) is impeded. At the same time, young patients wish as much normality as possible in their daily life, e. g. social contacts with not-affected peers. In many cases, young adults affected try to maintain a cautious distance to psychiatric facilities as well as to other patients. CONCLUSIONS Young people suffering from mental illness are in a complicated process of identity formation, as they have to integrate the illness into their self-concept and their daily life (illness-identity work). Hence, their assistance needs are different from those of older patients. It is a challenge for community based psychiatry to provide help offers which meet the specific requirements of young mentally ill people.

Erwachsene Kinder psychisch erkrankter Eltern: Ergebnisse einer explorativen Fragebogenstudie

Leseprobe ----- Zusammenfassung Zielsetzung: In diesem Beitrag werden Ergebnisse der EKipeE-Studie vorgestellt, in der erwachsene Kinder psychisch kranker Eltern befragt wurden. Ziel war es, die von den Befragten wahrgenommenen langfristigen Auswirkungen auf ihre Biographie, ihre Personlichkeit und ihre Sozialbeziehungen zu beschreiben. Auserdem sollten Zusammenhange zwischen ausgewahlten belastenden Kindheitserfahrungen und Problemen im Erwachsenenalter untersucht werden. Ferner sollten die Unterstutzungsbedurfnisse und -wunsche der erwachsenen Kinder erfasst werden. Methode: Im Rahmen einer online-Fragebogenstudie wurden N=561 erwachsene Kinder psychisch kranker Eltern befragt. Die quantitativen Fragebogendaten wurden mit SPSS 23.0 statistisch ausgewertet; die freien Antworten und Kommentare wurden inhaltsanalytisch ausgewertet. Ergebnisse: Die Studienteilnehmer berichteten vielfaltige emotionale und soziale Probleme, die sie als Folgen ihrer Kindheitserfahrungen wahrnehmen. Sehr haufig haben sie das Gefuhl, in ihrer Identitat und ihrem Verhalten negativ gepragt zu sein. Viele ausern deswegen einen Bedarf an professioneller Beratung und Unterstutzung. Diskussion: Es handelt sich um die bislang umfangreichste Studie zu den langfristigen Folgen einer Kindheit mit einem psychisch kranken Elternteil im deutschsprachigen Raum. Die Ergebnisse verdeutlichen, dass fruhzeitige Hilfe- und Praventionsangebote fur betroffene Kinder, Eltern und Familien notwendig sind. Auch die Bereitstellung spezifischer Beratungsangebote fur erwachsene Kinder psychisch kranker Eltern wird empfohlen. Schlagworter: erwachsene Kinder, psychisch kranke Eltern, langfristige Auswirkungen, Entwicklungsrisiken, Hilfebedarf fur betroffene Familien ----- Adult children of parents with mental illnesses: Results from an exploratory survey Abstract Objective: This paper presents the results of the EKipeE Study, which surveyed the adult children of parents with mental illnesses. The objective of the study was to extrapolate the long-term effects that parents’ mental illnesses had on their children’s biographies, personalities, and social relationships. The study also aimed to make connections between specific stressful situations in childhood and problems in later life. Additionally, the study aimed to understand what kind of support the adult children required and wanted. Method: Using an online questionnaire, N=561 adult children of parents with mental illnesses were surveyed. The quantitative survey data was statistically analyzed using SPSS 23.0; the qualitative data from answers and other remarks was evaluated using content analysis. Results: Participants in the study reported a diverse range of emotions and social problems that they perceived as having resulted from their childhood experiences. They often had the feeling that their identity and behavior had been affected negatively. Consequently, many expressed a need for professional counselling and support. Discussion: The study was the most extensive to date within German- speaking countries to survey the long-term effects of a childhood spent with a parent with mental illnesses. The results underline the need for early support and prevention services for affected children, parents, and families. The provision of specific counselling services for adult children of parents with mental illnesses is also recommended. Key words: adult children, parents with mental illnesses, long-term effects, development risks, support for affected families ----- Bibliographie: Jungbauer, Johannes/Heitmann, Katharina/Westphal, Andrea/Vock, Miriam: Erwachsene Kinder psychisch erkrankter Eltern: Ergebnisse einer explorativen Fragebogenstudied, ZfF, 2-2018, S. 216-229. https://doi.org/10.3224/zff.v30i2.05