Maria Eliane Moreira Freire

Health-related quality of life among patients with advanced cancer: an integrative review

Esta revisao integrativa da literatura objetivou caracterizar artigos abordando a qualidade de vida relacionada a saude — QVRS — de pacientes com câncer avancado nas literaturas nacional e internacional e sumarizar os fatores contribuintes para a melhora ou a piora da QVRS de pacientes com câncer avancado, evidenciados na literatura pesquisada. A busca foi realizada nas bases eletronicas CINHAL, EMBASE, PUBMED, SCIELO e LILACS. Dentre os 21 artigos que compuseram a amostra, 13 evidenciaram melhora da QVRS de pacientes com câncer avancado mediante a realizacao de intervencoes fisicas, emocionais e espirituais. Em oito estudos, foram identificados sinais e sintomas preditores de baixa QVRS, como dor, fadiga, disturbio do sono, depressao, alteracoes nutricionais, entre outros. Os resultados mostram que manifestacoes clinicas inerentes ao câncer sao fatores que podem rebaixar a QVRS do paciente, enquanto os beneficios fisicos, psicologicos e espirituais resultantes de intervencoes terapeuticas, podem promover a melhora.

Qualidade De Vida Relacionada À Saúde De Pacientes Com Câncer Avançado: Uma Revisão Integrativa

Esta revisao integrativa da literatura objetivou caracterizar artigos abordando a qualidade de vida relacionada a saude — QVRS — de pacientes com câncer avancado nas literaturas nacional e internacional e sumarizar os fatores contribuintes para a melhora ou a piora da QVRS de pacientes com câncer avancado, evidenciados na literatura pesquisada. A busca foi realizada nas bases eletronicas CINHAL, EMBASE, PUBMED, SCIELO e LILACS. Dentre os 21 artigos que compuseram a amostra, 13 evidenciaram melhora da QVRS de pacientes com câncer avancado mediante a realizacao de intervencoes fisicas, emocionais e espirituais. Em oito estudos, foram identificados sinais e sintomas preditores de baixa QVRS, como dor, fadiga, disturbio do sono, depressao, alteracoes nutricionais, entre outros. Os resultados mostram que manifestacoes clinicas inerentes ao câncer sao fatores que podem rebaixar a QVRS do paciente, enquanto os beneficios fisicos, psicologicos e espirituais resultantes de intervencoes terapeuticas, podem promover a melhora.

Assistência espiritual e religiosa a pacientes com câncer no contexto hospitalar

Objetivo : Investigar como pacientes com diagnostico de câncer concebem o apoio religioso/espiritual no contexto hospitalar. Metodos : Estudo exploratorio, com abordagem qualitativa, realizado com pacientes acometidos por câncer, assistidos na Clinica Medica e Cirurgica do Hospital Universitario Lauro Wanderley - HULW/UFPB. Resultados : Da analise dos dados qualitativos, depois das leituras atentivas das falas dos entrevistados, emergiram as seguintes categorias tematicas: Categoria 1 - Significado do apoio religioso/espiritual recebido durante hospitalizacao; Categoria 2 - Promotores do apoio religioso/espiritual no ambiente hospitalar; Categoria 3 - Participacao em atividades religiosas/espirituais durante hospitalizacao. Conclusao : Os resultados revelaram que a religiosidade/espiritualidade e uma tatica importante no enfrentamento da doenca oncologica, considerando que os pacientes entrevistados relataram o significado positivo do apoio recebido, pois a fe proporciona uma maneira de pensar construtiva. Assim, foi possivel evidenciar a relevância do apoio religioso/espiritual para pacientes oncologicos durante a internacao hospitalar

Cuidados paliativos na UTI: compreensão, limites e possibilidades por enfermeiros

Objective: to verify the comprehension, limits and possibilities faced by nurses to perform palliative care for patients in the ICU of a hospital in Joao Pessoa/PB. Method: qualitative study conducted in April and May 2011 with six ICU nurses. We used a questionnaire containing data characterizing the sample and two guiding questions. The data were analyzed according to the Collective Subject Discourse. Result: multidisciplinary actions to promote well-being and comfort to patients and their families; actions that do not result in improvement. Limits: ack of trained professionals and a specific protocol for palliative care; spiritual support to the patient, a prescription and do not offer palliative care. The possibilities: perform actions that provide comfort and pain relief. Conclusion: ICU nurses have limitations with respect to patient care terminal and your family

Scientific Production of Patient’s Electronic Health Record in Online Journals from Brazilian scenario

The study aims to analyse the scientific production about patient’s Electronic Health Record (EHR) available in online journals from 2006 to 2015. This is an integrative review. The search was conducted in the Virtual Health Library and Portal Capes, considering only studies in Portuguese. The sample consisted of 17 articles. It was observed that from 2011 to 2012 is the period with the highest number of publications about the investigated issue. The majority of papers were published in journals in the area of computer science and the most common modality of publication was original article. It was found that scientific productions involving Electronic Health Record discussed about its importance and implementation in health services, as well as perceptions of health professionals about its utilization. The research evidenced the relevance of EHR in health services, emphasizing necessity for improved regulations of ethical and legal issues and creation of legal provision to concede judicial validity in Brazil.

Quality Of Life Of Women Living With HIV/AIDS

Objectives: to evaluate the quality of lifeof women withHIV/AIDSin the Stateof Paraiba anddefine them asthe socio-demographicprofile. Method: This was a descriptive, exploratory and quantitative study, conducted at the Hospital Clementino Fraga, had a population of 33 women with HIV / AIDS, using the form of interviews HATQoL, clinical and sociodemographic, data collection took place in July 2014 after approval of the CEP UFPB. Results and Discussion: There was concern domains with commitment of confidentiality, financial worry and sexual activity with a possible association with clinical and sociodemographic data obtained, most women: they are aged between 36-42 years acquired HIV through heterosexual sex, unmarried , have children (between 1-2), have low education (less than 9 years of schooling) and low income (up to two minimum wages). Conclusion: Therefore, it is necessary that the care of these women is conducted by interdisciplinary teams that promote integrated care, gazing beyond the individual needs, aspects related to their quality of life. In this perspective, the nurse plays a fundamental role in promoting quality of life. Keywords: Quality of life. Women. HIV. AIDS. Nursing.

Parents experiences of children with diabetes mellitus

Objective: to investigate experiences for parents of children with diabetes mellitus. Method: exploratory, descriptive study, with a qualitative approach, carried out in the municipalities of Alagoinha and Guarabira/PB, in March 2013, with the participation of 20 parents of children with diabetes mellitus, from semi-structured interviews. The data were analyzed using thematic analysis technique. Results: from the speeches of the participants the categories for analysis emerged: << Feelings of sadness, worry and helplessness before the diagnosis >>; << Change routines and daily habits >>; << Watch the child before the treatment >>; << Fear of the consequences of the disease >>; << >> Suffering; << The child self-care and difficulties in support area >>. Conclusion: attention to parents by health professionals is essential for diagnosis and the following treatment so that they feel more secure and able to care for a child with diabetes mellitus. Descriptors: Children; Chronic Disease; Parents. RESUMO Objetivo: investigar experiências por pais de crianças com diabetes mellitus. Método: estudo exploratório, descritivo, com abordagem qualitativa, realizado nos municípios Alagoinha e Guarabira/PB, no mês de março de 2013, com a participação de 20 pais de crianças com diabetes mellitus, a partir de entrevistas semiestruturadas. Os dados foram analisados pela Técnica de Análise Temática. Resultados: a partir dos discursos dos participantes, emergiram as categorias para análise: << Sentimentos de tristeza, preocupação e impotência perante o diagnóstico >>; << Mudança de rotinas e hábitos cotidianos >>; << Cuidado com a criança diante do tratamento >>; << Medo das consequências decorrentes da doença >>; << Sofrimento >>; << Autocuidado do filho e dificuldades na rede de apoio >>. Conclusão: a atenção aos pais pelos profissionais de saúde é essencial no momento do diagnóstico e no seguimento do tratamento para que estes se sintam mais seguros e capazes de cuidar de uma criança com diabetes mellitus. Descritores: Crianças; Doença Crônica; Pais. RESUMEN Objetivo: investigar experiencias por padres de niños con diabetes mellitus. Método: estudio exploratorio, descriptivo, con enfoque cualitativo, realizado en los municipios Alagoinha y Guarabira/PB, en el mes de marzo de 2013, con la participación de 20 padres de niños con diabetes mellitus, a partir de entrevistas semiestructuradas. Los datos fueron analizados por la Técnica de Análisis Temático. Resultados: a partir de los discursos de los participantes, surgieron las categorías para análisis: << Sentimientos de tristeza, preocupación e impotencia frente al diagnóstico >>; << Cambios de rutinas y hábitos cotidianos >>; << Cuidado com el niño frente al tratamiento >>; << Miedo de las consecuencias decurrentes de la enfermedad >>; << Sufrimiento >>; << Autocuidado del hijo y dificultades en la red de apoyo >>. Conclusión: la atención a los padres por los profesionales de salud es esencial en el momento del diagnóstico y en el seguimiento del tratamiento para que estos se sientan más seguros y capaces de cuidar de un niño con diabetes mellitus. Descritores: Niños; Enfermedad Crónica; Padres. Nurse, Professor Bachelor in Nursing, Federal University of Campina Grande/UFCG Campus Cuité/PB. Ph.D. student, Graduate Nursing Program, Federal University of Paraíba/PPGENF/UFPB. João Pessoa (PB), Brazil. E-mail: g.agra@yahoo.com.br; Nurse graduated from Federal University of Campina Grande, specialist in Urgency and Emergency Care from the CBPEX. Currently, nurse at SAMU (PicuíPB). Guarabira (PB), Brazil. E-mail: danyellysm@hotmail.com; Nurse. Professor, Bachelor of Nursing course /UFCG/PB. Ph.D. student, Graduate Program in Nursing, Federal University of Paraíba/PPGENF/UFPB. João Pessoa (PB), Brazil. E-mail: nathaniellycristina@gmail.com; Nurse, Master Professor, Health Technical School of Cajazeiras ETSC/UFCG, Ph.D. student, Associated Program of Graduate in Nursing UPE/UEPB. João Pessoa (PB), Brazil. E-mail: cecilia.dbo@gmail.com; Nurse, Ph.D. Professor in Nursing, Lauro Wanderley University Hospital/HULW/UFPB/PB, Federal University of Paraíba/PPGENF/UFPB. João Pessoa (PB), Brazil. E-mail: elimoreirafreire@gmail.com; Nurse, Ph.D. Professor in Nursing, Graduate Nursing Course, Federal University of Paraíba/PPGENF/UFPB. João Pessoa (PB), Brazil. E-mail: marthamiryam@hotmail.com ORIGINAL ARTICLE Agra G, Meneses DS, Santos NC et al. Parents experiences of children with... English/Portuguese J Nurs UFPE on line., Recife, 10(6):2066-74, June., 2016 2067 ISSN: 1981-8963 DOI: 10.5205/reuol.9199-80250-1-SM1006201620 Diabetes Mellitus (DM) is a metabolic disorder of multiple etiology associated with absolute or relative deficiency of insulin, whose symptomatology is characterized by metabolic and vascular and neuropathic complications. Being considered a chronic disease, it requires a continuous treatment of the people affected, resulting most often in physical, psychological and social distress linked to the limitations and changes in various spheres of life of the patient and his family. DM1 or children-young diabetes is a metabolic disorder syndrome caused by lack of insulin secretion due to damage in the beta cells of the pancreas or disorders that impair insulin production, characterized by chronic hyperglycemia with carbohydrate metabolism disorders, lipid, and proteins. Its incidence mainly affects children and adolescents. In the face of hyperglycemia, the patient may experience manifestations of the symptomatic triad, as polyuria, polydipsia, and polyphagia, and sudden weight loss, nausea, vomiting or abdominal pain. When the patient does not follow the recommended treatment, he may develop complications, such as neuropathy, nephropathy, among others. According to the International Diabetes Federation in recent decades, the number of people affected is growing every year in almost all age groups. Estimates for 2012 pointed to over 370 million people with diabetes worldwide; 4.8 million people are undiagnosed, and over

Calidad De Vida Relacionada Con La Salud De Los Pacientes Con Cáncer Avanzado: Una Revisión Integradora

471 million was spent on health care for diabetes. Brazil is the fifth country with the highest absolute number of diabetics in the world, with prospects of remaining in the same position until 2030. Study conducted by the Ministry of Health in collaboration with the Brazilian Society of Diabetes found that in 2012, there were in Brazil over 12 million diabetics and the incidence of type 1 DM, for the same year was in the order of one to two cases per thousand young people. With regard to the incidence of the disease in children, Eurodiab Collaborative Group published in 2008, a survey of 16,362 cases of DM at this stage and noted a 6.3% rate in children under four years of age; 3.1% for those between five and nine years and 2.4% for those between ten fourteen years. In children and adolescents, DM1 has grown 3% per year worldwide, rising to 5% among children in preschool. It is estimated that about 70,000 young people under 15 develop the disease. The Brazilian estimate provided for 2030 is that, on average, 200 young people have been diagnosed with diabetes per day. Childhood being a stage of physical, psychological and social requires special attention, since it is observed the development and infant growth, and when it presents a diagnosis of a chronic degenerative disease such as DM1, parents are almost always responsible for the care to be performed, as well as observation of clinical symptoms and/or complications arising from the clinical course of the disease. Parents of children with chronic diseases often feel powerless in the living process on limitations and suffer the new situation, changes in lifestyle and the demand for specific care that the treatment of the disease requires. Faced with these difficulties by parents and children, health professionals should reflect on their responsibility to the process of their adaptation to the disease, continually seeking strategies to provide them develop skills and knowledge, important tools for motivation to treatment adherence of the son and family reorganization. In this sense, it is essential psychological support for both the child and for the parents, because the impact of the diagnosis of a chronic disease, such as DM, hinders the acceptance of the health-disease process, and this creates family strength on the break of paradigms, especially nutritional treatment which must be performed successfully for the control of endocrine disorder. 5 In this perspective, knowing the expectations, perceptions and experiences of parents of children with diabetes, it is extremely important for health professionals, especially those working in primary care, serving as grants to improve the quality of care for these people to help them to recognize and understand the behavior of their children; encourage them to participate in care to promote and facilitate the interaction of the child who has diabetes with their family, strengthening family ties. ● To investigate experiences for parents of children with diabetes mellitus. ● To describe the care that they provide to these children. Considering the study involves the pursuit of elements of the context of the experiences of parents of children with diabetes mellitus, the qualitative approach shows relevant to the scope of the proposed objective. INTRODUCTION

Constipação em pacientes com doençaoncológica avançada em uso de opioides

Esta revisao integrativa da literatura objetivou caracterizar artigos abordando a qualidade de vida relacionada a saude — QVRS — de pacientes com câncer avancado nas literaturas nacional e internacional e sumarizar os fatores contribuintes para a melhora ou a piora da QVRS de pacientes com câncer avancado, evidenciados na literatura pesquisada. A busca foi realizada nas bases eletronicas CINHAL, EMBASE, PUBMED, SCIELO e LILACS. Dentre os 21 artigos que compuseram a amostra, 13 evidenciaram melhora da QVRS de pacientes com câncer avancado mediante a realizacao de intervencoes fisicas, emocionais e espirituais. Em oito estudos, foram identificados sinais e sintomas preditores de baixa QVRS, como dor, fadiga, disturbio do sono, depressao, alteracoes nutricionais, entre outros. Os resultados mostram que manifestacoes clinicas inerentes ao câncer sao fatores que podem rebaixar a QVRS do paciente, enquanto os beneficios fisicos, psicologicos e espirituais resultantes de intervencoes terapeuticas, podem promover a melhora.

Vivência de mães na unidade de terapia intensiva neonatal

A constipacao e um disturbio muito comum em pacientes oncologicos com doenca avancada, podendo causar dor, distensaoabdominal, nauseas e vomitos. O presente estudo teve como objetivo identificar evidencias disponiveis na literatura sobre asacoes de cuidados paliativos para o paciente oncologico, em uso de opioides com constipacao intestinal, considerando-seque sao as acoes decorrentes das necessidades de cuidado que podem contribuir para o controle desse sintoma. A presenteinvestigacao trata-se de uma revisao integrativa da literatura e, para selecionar as publicacoes cientificas, foram acessadas asbases de dados da Biblioteca Virtual de Saude, especificamente LILACS e SciELO. Os criterios de inclusao adotados foram:artigos que retratassem cuidados paliativos ao paciente com constipacao intestinal decorrente do uso de opioides; que estivessemindexados nas bases de dados supracitadas; que fossem publicados na lingua portuguesa, no periodo de 2002 a 2012e cujos resumos e textos estivessem disponiveis online, na integra. Foram excluidos os artigos com acesso restrito. Ao finalda busca, encontraram-se 20 referencias, contudo somente sete se enquadravam nos criterios de inclusao desse estudo. Osartigos inseridos nesta pesquisa ressaltaram que a constipacao e um sintoma bastante comum em pacientes oncologicos comdoenca avancada em uso de opioides. Essa revisao mostrou que a adequada avaliacao, o tratamento nutricional, o uso racionalde medicamentos laxativos e antagonistas de opioides, assim como novos recursos dietoterapicos, como o uso do fungoAgaricus sylvaticus, podem promover o adequado controle desse sintoma, evitando complicacoes e procedimentos invasivos. Constipation is a very common disorder in oncologic patients with advanced disease, and it may cause pain, abdominal distension,nausea and vomit. This study had as its aim to identify available evidences on the literature about actions of palliativecare for oncologic patients, considering these actions to be the result from the necessities of care that may contribute to thecontrol of this symptom. This investigation is a literature integrative review; and to select scientific publications, we accessedthe databases from Virtual Health Library (VHL), specifically LILACS and SciELO. Inclusion criteria were adapted: the articlesportraying palliative care to patients with constipation due to the use of opioids, with were indexed in the databases mentionedabove, which were published in Portuguese in the period from 2002 to 2012 and whose abstracts and texts were availableonline in its entirety. We excluded studies with restricted access. At the end of the research, we found 20 references but onlyseven met the criteria for inclusion. The articles included in this study pointed out that constipation is a very common symptomin cancer patients with advanced disease using opioids. This review showed that a proper evaluation, nutritional management,rational use of medicines and laxatives opioids antagonists, as well as new features such as the use of diet-therapeutic drugsbased on Agaricus sylvaticus can promote adequate control of symptoms, preventing complications and invasive procedures.