Maria José Menossi

A problemática do sofrimento: percepçao do adolescente com cancer

Adolescents with cancer undergo suffering resulting from diagnosis, therapy and changes in their routine and family life. The objective of this study was to identify the chief causes of their suffering, identified in interviews with those patients themselves. The study population were 12 adolescents admitted to the Paediatric Clinic of the Ribeirao Preto Medical School Clinical Hospital, University of Sao Paulo, from the 13th. November, 1997 to 16th. December, 1997. Data were analysed by means of qualitative approach. The chief causes of suffering reported by the studied adolescents were: hospitalization, restrictions in routine activities, aggressive therapy, modification of self-image and fear of dying. The adolescents not only talked about their suffering but also offered some suggestions to lessen it, as for instance, use of central venous catheter, liberation of visiting time, reducing number of hospitalization events, efficient communication and good rapport with the attending team.

Cuidados paliativos para adolescentes com câncer: uma revisão da literatura

Providing care to adolescents with cancer in the process of death and dying has been a great challenge for health professionals. This challenge is marked by a high emotional burden and specificities of this stage of human development. The purpose of the present study was to review the scientific literature regarding palliative care to adolescents with cancer. This study is a literature review, which data collection was performed using Lilacs, Medline, and PsycInfo, in addition to non-systematic databases. An analysis of the manuscripts revealed three themes: adolescence and its different definitions; the particularities of adolescents with cancer; and palliative care to adolescents with cancer. The study showed there is a scarcity of evidenced-based research defining the panorama of symptoms affecting the quality of life during palliative care and an absence of specific programs in the stage of fast changes that, alone, demand for adaptive efforts.Cuidar de adolescentes com câncer no processo de morte e morrer e um desafio para os profissionais de saude, pelo alto custo emocional e especificidades que envolvem esta etapa do desenvolvimento humano. O objetivo deste estudo e revisar a producao cientifica relativa aos cuidados paliativos para adolescentes com câncer. Trata-se de uma pesquisa bibliografica com coleta de dados nas bases Lilacs, Medline, PsycInfo e vias nao-sistematicas. Identificaram-se tres tematicas: adolescencia e suas diferentes definicoes; particularidades do adolescente com câncer e cuidados paliativos para adolescente com câncer. Observou-se ausencia de pesquisas baseadas em evidencias que definam o panorama dos sintomas que afetam a qualidade de vida durante os cuidados paliativos, bem como ausencia de programas especificos para esta fase de transformacoes rapidas que, por si so, demanda esforcos adaptativos.

A dor e o desafio da interdisciplinaridade no cuidado à criança

In the light of the multiple dimensions involving the phenomenon of pain in children and adolescents with cancer, this study aimed to present a reflection on interdisciplinary practice as a healthcare resource for these patients. The study focused on the aspects related to the need for this practice in the aforementioned context and the challenges of its implementation. These reflections support the acknowledgement that the articulation among several aspects of knowledge in a common project is essential to contemplate the multiple dimensions that compose healthcare for children and adolescents with cancer in pain situations. However, these articulations should not only be theoretical, but also built by the professionals involved in this practice.In the light of the multiple dimensions involving the phenomenon of pain in children and adolescents with cancer, this study aimed to present a reflection on interdisciplinary practice as a healthcare resource for these patients. The study focused on the aspects related to the need for this practice in the aforementioned context and the challenges of its implementation. These reflections support the acknowledgement that the articulation among several aspects of knowledge in a common project is essential to contemplate the multiple dimensions that compose healthcare forchildren and adolescents with cancer in pain situations. However, these articulations should not only be theoretical, but also built by the professionals involved in this practice.

Pain and the challenge of interdisciplinarity in child care

In the light of the multiple dimensions involving the phenomenon of pain in children and adolescents with cancer, this study aimed to present a reflection on interdisciplinary practice as a healthcare resource for these patients. The study focused on the aspects related to the need for this practice in the aforementioned context and the challenges of its implementation. These reflections support the acknowledgement that the articulation among several aspects of knowledge in a common project is essential to contemplate the multiple dimensions that compose healthcare for children and adolescents with cancer in pain situations. However, these articulations should not only be theoretical, but also built by the professionals involved in this practice.In the light of the multiple dimensions involving the phenomenon of pain in children and adolescents with cancer, this study aimed to present a reflection on interdisciplinary practice as a healthcare resource for these patients. The study focused on the aspects related to the need for this practice in the aforementioned context and the challenges of its implementation. These reflections support the acknowledgement that the articulation among several aspects of knowledge in a common project is essential to contemplate the multiple dimensions that compose healthcare forchildren and adolescents with cancer in pain situations. However, these articulations should not only be theoretical, but also built by the professionals involved in this practice.

The dialogic life-death in care delivery to adolescents with cancer

Neste estudo o objetivo foi compreender a experiencia dos adolescentes com câncer, familiares e equipe de saude relacionada a morte no contexto do cuidado de saude, a luz do referencial teorico da complexidade, proposto por Edgar Morin. Participaram 12 adolescentes, 14 familiares e 25 profissionais de saude. A entrevista foi utilizada como recurso para a coleta de dados. A discussao dos dados empiricos foi conduzida pela dialogica vida/morte no contexto do cuidado do adolescente com câncer. Observou-se que a singularidade no modo de viver o tempo e enfrentar a morte pelo adolescente e a possibilidade da perda do ente querido pela familia pode nao estar em sintonia com o cuidado oferecido pela equipe de saude, considerando aspectos de ordem estrutural, organizacional e afetivos. Nao basta a equipe apenas, racionalmente, realizar escolhas quanto ao uso dos dispositivos diagnosticos e terapeuticos, conforme momentos predefinidos da doenca, sendo necessaria a compreensao contextualizada e sensivel de cada situacao.This study aims to understand the experience of adolescents with cancer, family and the health team regarding death in the healthcare context, in the light of Edgar Morins proposed theoretical framework of complexity. Participants were 12 adolescents, 14 relatives and 25 health professionals. The interview was used for data collection. The discussion of data was guided by the dialogic life-death in the context of care to adolescents with cancer. It was observed that the singularity in the way the adolescent experiences time and faces death and the possibility that the family will lose a loved one may not be in accordance with the care the health team offers, considering structural, organizational and affective aspects. It is not enough for the team just to rationally make choices on the use of diagnostic-therapeutic devices, in line with predefined moments in the disease. Instead, a contextualized and sensitive understanding of each situation is needed.

A dialógica vida/morte no cuidado do adolescente com câncer

Neste estudo o objetivo foi compreender a experiencia dos adolescentes com câncer, familiares e equipe de saude relacionada a morte no contexto do cuidado de saude, a luz do referencial teorico da complexidade, proposto por Edgar Morin. Participaram 12 adolescentes, 14 familiares e 25 profissionais de saude. A entrevista foi utilizada como recurso para a coleta de dados. A discussao dos dados empiricos foi conduzida pela dialogica vida/morte no contexto do cuidado do adolescente com câncer. Observou-se que a singularidade no modo de viver o tempo e enfrentar a morte pelo adolescente e a possibilidade da perda do ente querido pela familia pode nao estar em sintonia com o cuidado oferecido pela equipe de saude, considerando aspectos de ordem estrutural, organizacional e afetivos. Nao basta a equipe apenas, racionalmente, realizar escolhas quanto ao uso dos dispositivos diagnosticos e terapeuticos, conforme momentos predefinidos da doenca, sendo necessaria a compreensao contextualizada e sensivel de cada situacao.This study aims to understand the experience of adolescents with cancer, family and the health team regarding death in the healthcare context, in the light of Edgar Morins proposed theoretical framework of complexity. Participants were 12 adolescents, 14 relatives and 25 health professionals. The interview was used for data collection. The discussion of data was guided by the dialogic life-death in the context of care to adolescents with cancer. It was observed that the singularity in the way the adolescent experiences time and faces death and the possibility that the family will lose a loved one may not be in accordance with the care the health team offers, considering structural, organizational and affective aspects. It is not enough for the team just to rationally make choices on the use of diagnostic-therapeutic devices, in line with predefined moments in the disease. Instead, a contextualized and sensitive understanding of each situation is needed.

Palliative care to adolescents with cancer: a literature review

Providing care to adolescents with cancer in the process of death and dying has been a great challenge for health professionals. This challenge is marked by a high emotional burden and specificities of this stage of human development. The purpose of the present study was to review the scientific literature regarding palliative care to adolescents with cancer. This study is a literature review, which data collection was performed using Lilacs, Medline, and PsycInfo, in addition to non-systematic databases. An analysis of the manuscripts revealed three themes: adolescence and its different definitions; the particularities of adolescents with cancer; and palliative care to adolescents with cancer. The study showed there is a scarcity of evidenced-based research defining the panorama of symptoms affecting the quality of life during palliative care and an absence of specific programs in the stage of fast changes that, alone, demand for adaptive efforts.Cuidar de adolescentes com câncer no processo de morte e morrer e um desafio para os profissionais de saude, pelo alto custo emocional e especificidades que envolvem esta etapa do desenvolvimento humano. O objetivo deste estudo e revisar a producao cientifica relativa aos cuidados paliativos para adolescentes com câncer. Trata-se de uma pesquisa bibliografica com coleta de dados nas bases Lilacs, Medline, PsycInfo e vias nao-sistematicas. Identificaram-se tres tematicas: adolescencia e suas diferentes definicoes; particularidades do adolescente com câncer e cuidados paliativos para adolescente com câncer. Observou-se ausencia de pesquisas baseadas em evidencias que definam o panorama dos sintomas que afetam a qualidade de vida durante os cuidados paliativos, bem como ausencia de programas especificos para esta fase de transformacoes rapidas que, por si so, demanda esforcos adaptativos.

La dialógica vida-muerte en el cuidado al adolescente con cáncer

Neste estudo o objetivo foi compreender a experiencia dos adolescentes com câncer, familiares e equipe de saude relacionada a morte no contexto do cuidado de saude, a luz do referencial teorico da complexidade, proposto por Edgar Morin. Participaram 12 adolescentes, 14 familiares e 25 profissionais de saude. A entrevista foi utilizada como recurso para a coleta de dados. A discussao dos dados empiricos foi conduzida pela dialogica vida/morte no contexto do cuidado do adolescente com câncer. Observou-se que a singularidade no modo de viver o tempo e enfrentar a morte pelo adolescente e a possibilidade da perda do ente querido pela familia pode nao estar em sintonia com o cuidado oferecido pela equipe de saude, considerando aspectos de ordem estrutural, organizacional e afetivos. Nao basta a equipe apenas, racionalmente, realizar escolhas quanto ao uso dos dispositivos diagnosticos e terapeuticos, conforme momentos predefinidos da doenca, sendo necessaria a compreensao contextualizada e sensivel de cada situacao.This study aims to understand the experience of adolescents with cancer, family and the health team regarding death in the healthcare context, in the light of Edgar Morins proposed theoretical framework of complexity. Participants were 12 adolescents, 14 relatives and 25 health professionals. The interview was used for data collection. The discussion of data was guided by the dialogic life-death in the context of care to adolescents with cancer. It was observed that the singularity in the way the adolescent experiences time and faces death and the possibility that the family will lose a loved one may not be in accordance with the care the health team offers, considering structural, organizational and affective aspects. It is not enough for the team just to rationally make choices on the use of diagnostic-therapeutic devices, in line with predefined moments in the disease. Instead, a contextualized and sensitive understanding of each situation is needed.

Cuidados paliativos para adolescentes con cáncer: una revisión de la literatura

Providing care to adolescents with cancer in the process of death and dying has been a great challenge for health professionals. This challenge is marked by a high emotional burden and specificities of this stage of human development. The purpose of the present study was to review the scientific literature regarding palliative care to adolescents with cancer. This study is a literature review, which data collection was performed using Lilacs, Medline, and PsycInfo, in addition to non-systematic databases. An analysis of the manuscripts revealed three themes: adolescence and its different definitions; the particularities of adolescents with cancer; and palliative care to adolescents with cancer. The study showed there is a scarcity of evidenced-based research defining the panorama of symptoms affecting the quality of life during palliative care and an absence of specific programs in the stage of fast changes that, alone, demand for adaptive efforts.Cuidar de adolescentes com câncer no processo de morte e morrer e um desafio para os profissionais de saude, pelo alto custo emocional e especificidades que envolvem esta etapa do desenvolvimento humano. O objetivo deste estudo e revisar a producao cientifica relativa aos cuidados paliativos para adolescentes com câncer. Trata-se de uma pesquisa bibliografica com coleta de dados nas bases Lilacs, Medline, PsycInfo e vias nao-sistematicas. Identificaram-se tres tematicas: adolescencia e suas diferentes definicoes; particularidades do adolescente com câncer e cuidados paliativos para adolescente com câncer. Observou-se ausencia de pesquisas baseadas em evidencias que definam o panorama dos sintomas que afetam a qualidade de vida durante os cuidados paliativos, bem como ausencia de programas especificos para esta fase de transformacoes rapidas que, por si so, demanda esforcos adaptativos.

Dolor y reto de la interdisciplinaridad frente al cuidado del niño

In the light of the multiple dimensions involving the phenomenon of pain in children and adolescents with cancer, this study aimed to present a reflection on interdisciplinary practice as a healthcare resource for these patients. The study focused on the aspects related to the need for this practice in the aforementioned context and the challenges of its implementation. These reflections support the acknowledgement that the articulation among several aspects of knowledge in a common project is essential to contemplate the multiple dimensions that compose healthcare for children and adolescents with cancer in pain situations. However, these articulations should not only be theoretical, but also built by the professionals involved in this practice.In the light of the multiple dimensions involving the phenomenon of pain in children and adolescents with cancer, this study aimed to present a reflection on interdisciplinary practice as a healthcare resource for these patients. The study focused on the aspects related to the need for this practice in the aforementioned context and the challenges of its implementation. These reflections support the acknowledgement that the articulation among several aspects of knowledge in a common project is essential to contemplate the multiple dimensions that compose healthcare forchildren and adolescents with cancer in pain situations. However, these articulations should not only be theoretical, but also built by the professionals involved in this practice.