Simon P. Hammond

Participant information clips: a role for digital video technologies to recruit, inform and debrief research participants and disseminate research findings

Although information communication technology (ICT) appears to be extending into many areas of research, this paper maintains that the potential of such technology to convey important information with ethical dimensions to potential participants has not been exploited. In this regard, the paper explores the development and the use of short movie clips labelled participant information clips (PICs) as a way of transmitting such information within a contextualised research example. The potentials and limitations of using PICs are considered in line with research ethics, risk and the need to constantly reflect on meaningful ways of gaining consent and keeping participants informed throughout the research process. We conclude that PICs are easily constructed and offer a valuable route to providing information.

Enhanced eBooks and multimodal publishing: spitting games and making claims with multimodal data:

The ubiquity of digital technologies has led to an increase in the use of video-based research, the development of multimodal methodologies and the analysis of this material across a range of perspectives. The possibilities that multimodal research approaches exploring the interplay of image, talk and movement create, however, are reliant upon a less-than-multimodal way of publishing such work. This article considers how ‘enhanced eBooks’, which can incorporate text, audio and audiovisual material as one complete document, may allow for the inclusion of multimodal data to enrich qualitative research, providing a model for how this can be accomplished. To do this, multimodal materials from a study in which vulnerable adolescents revisited places of personal importance and recorded the narratives such visits elicited via camcorder are examined. The transcript, audiovisual clips and analysis presented provide an insight into the possibilities that multimodal publications herald, with discussions reflecting the challenges and possibilities it generates.

From looked after children to looking after children:Insight from an unusual perspective

This study takes a participatory research approach to build a single case study from three interviews undertaken with one individual who had experienced being in care first-hand, and who has subsequently been employed in the care system. Interview material was thematically analysed. Critical discussions generated suggestions relating to concerns expressed about highly regulated approaches to care and how continuity of care might be improved through enhanced recruitment processes.

Freedom of Information Act: scalpel or just a sharp knife?

The concluding statement of the Burns Commission, established to evaluate whether changes are needed to the Freedom of Information Act (FOIA), ruled no major legislative changes were required. As such Freedom of Information (FOI) legislation still enables anyone to obtain information from public authorities. In this brief report article we explore arguments regarding FOI as an instrument for healthcare research using an international research programme as a case study.

Embracing Powerlessness in Pursuit of Digital Resilience: Managing Cyber-Literacy in Professional Talk

The use of digital media by adolescents living in out-of-home care raises safeguarding and risk-management concerns, creating challenges for practitioners in how to control risk while promoting independence. This article explores how professionals working in residential care negotiated their own and adolescents’ use of ubiquitous digital phenomena. Extracts from everyday conversations occurring during a participatory research project working with adolescents and carers in four English residential care homes are discursively analyzed to demonstrate how professionals drew on socially available resources to construct digital media usage. Analysis demonstrates an orientation toward mobilizations of powerlessness as accepted, the usefulness of constructing digital competency as a function of generation, and the need for professionals to embrace powerlessness. Adopting a position of embraced powerlessness accepts the inability to halt access and use of digital technologies. This position enabled workers to facilitate opportunities for digital resilience development in vulnerable adolescents.

DISRUPTIONS, DISCONTINUITIES AND DISPERSIONS: ETHNOGRAPHIC FINDINGS ON DISJUNCTURES IN ORGANISING ORTHOPAEDIC WARD PRACTICES IN DEMENTIA CARE

four to eight co-existing NPI symptoms. Disinhibition and irritability were common symptoms identified by the respondents. Frequency, severity and distress varied. From the narrative data thirteen categories were created; Communication challenges, lacking self-insight, a changed person, self-neglect, diagnosis before person, anti-social behaviour, suicidal thoughts, loss of impulse control, childlike behaviour, breeching social norms, coping and problem solving, support and unmet needs and fears for safety. The following two themes emerged; Living with a well-known stranger and Coping and overstepping social norms. Conclusions: Family members to persons with FTD found symptoms such as; apathy, disinhibition, and irritability most distressing. Coping and living alongside a changed family member with anti-social behaviour and other NPS was demanding on practical and emotional levels. The presence of NPS can threaten the safety and welfare of the person with FTD and their family in real world and on social media. Support offered should focus on the unique physical and psychological needs of the family.

PERFECTED enhanced recovery (PERFECT-ER) care versus standard acute care for patients admitted to acute settings with hip fracture identified as experiencing confusion: study protocol for a feasibility cluster randomized controlled trial

BackgroundHealth and social care provision for an ageing population is a global priority. Provision for those with dementia and hip fracture has specific and growing importance. Older people who break their hip are recognised as exceptionally vulnerable to experiencing confusion (including but not exclusively, dementia and/or delirium and/or cognitive impairment(s)) before, during or after acute admissions. Older people experiencing hip fracture and confusion risk serious complications, linked to delayed recovery and higher mortality post-operatively. Specific care pathways acknowledging the differences in patient presentation and care needs are proposed to improve clinical and process outcomes.MethodsThis protocol describes a multi-centre, feasibility, cluster-randomised, controlled trial (CRCT) to be undertaken across ten National Health Service hospital trusts in the UK. The trial will explore the feasibility of undertaking a CRCT comparing the multicomponent PERFECTED enhanced recovery intervention (PERFECT-ER), which acknowledges the differences in care needs of confused older patients experiencing hip fracture, with standard care. The trial will also have an integrated process evaluation to explore how PERFECT-ER is implemented and interacts with the local context. The study will recruit 400 hip fracture patients identified as experiencing confusion and will also recruit “suitable informants” (individuals in regular contact with participants who will complete proxy measures). We will also recruit NHS professionals for the process evaluation. This mixed methods design will produce data to inform a definitive evaluation of the intervention via a large-scale pragmatic randomised controlled trial (RCT).DiscussionThe trial will provide a preliminary estimate of potential efficacy of PERFECT-ER versus standard care; assess service delivery variation, inform primary and secondary outcome selection, generate estimates of recruitment and retention rates, data collection difficulties, and completeness of outcome data and provide an indication of potential economic benefits. The process evaluation will enhance knowledge of implementation delivery and receipt.Trial registrationISRCTN, 99336264. Registered on 5 September 2016.

IMPLEMENTATION OF THE PERFECT-ER INTERVENTION DESIGNED TO ENHANCE RECOVERY FOR PEOPLE WITH HIP FRACTURE AND COGNITIVE IMPAIRMENT IN ACUTE TRAUMA WARDS

Presence of depression, n (%) 12,697 (19.1%) 12,660 (19.1%) Index event provider, n (%) Internal medicine 37,234 (56.1%) 37,612 (56.6%) Family practice 21,084 (31.8%) 26,468 (39.9%) Nurse practitioner 1,474 (2.2%) 0 (0.0%) General practice 860 (1.3%) 1,754 (2.6%) Geriatric medicine 290 (0.4%) 565 (0.9%) Physician assistant 648 (1.0%) 0 (0.0%) Missing provider specialty 914 (1.4%) 0 (0.0%) Other provider 3.895 (5.9%) 0 (0.0%)