Yana Balduíno de Araújo

Conhecimento da família acerca da condição crônica na infância

The objective of this qualitative study was to identify the knowledge from the family about the chronic condition in childhood, as well as specific care to be given in their home. The data was collected at the pediatric clinic of the Lauro Wanderley University Hospital in Brazil, involving seven care takers of children diagnosed with a chronic disease between January and April of 2008. The collection technique was the semi-structured interview. Data interpretation followed the thematic analysis method. The results reveal that the information given to the family has been given in a very subtle way and the mothers feel difficulties in learning the orientations, given the technical and specific medical vocabulary. This impedes the development of autonomy in their administration of care for the child who has a chronic disease. Mothers’ knowledge about their child’s disease is not enough for the development of home care. The health team needs to interact with the family, creating the domino effect towards a process of autonomous home care. DEsCRIPTORs: Child hospitalized. Chronic disease. Family. CONOCIMIENTO DE LA FAMILIA sOBRE LA CONDICION CRONICA EN LA INFANCIA REsuMEN: Investigacion cualitativa que tuvo como objetivo identificar el conocimiento de la familia acerca de la patologia cronica en la infancia y de los cuidados especificos que deben ser realizados en el domicilio. Los datos fueron recolectados en la clinica pediatrica del Hospital Universitario Lauro Wanderley con siete acompanantes de los ninos con diagnostico de enfermedad cronica, entre enero y abril de 2008. La tecnica de recoleccion fue la entrevista semiestructurada. La interpretacion de los datos sigue el metodo de analisis tematico. Los resultados revelan que las informaciones a las familias han ocurrido de forma sutil y las madres sienten dificultades en asimilar las orientaciones, ya que ellas poseen un contenido tecnico y especifico del vocabulario medico, imposibilitando el desarrollo de la autonomia en el cuidado con el nino portador de enfermedad cronica. El conocimiento de las madres acerca de la enfermedad del nino no es suficiente para el desarrollo del cuidado en el domicilio. El equipo de salud necesita interactuar con la familia desencadenando un proceso de autonomia para el cuidado en el domicilio. DEsCRIPTOREs: Nino hospitalizado. Enfermedad cronica. Familia.

Criança em idade escolar hospitalizada: significado da condição crônica

This study aimed to better understand the meaning of chronic disease for school-age children. It involves qualitative, descriptive, and exploratory research. The field-research was performed in a pediatric clinic of a University Hospital in Brazil. Seven pediatric inpatients in the aforementioned institution with chronic illness, aged seven to twelve years of age participated in the study. The data was collected via semi-structured interviews and followed thematic interpretation principles. The results showed that these children experience chronic disease as something which imposes limitations and difficulties on their daily lives. However, there have been reports of children showing the understanding of disease as something normal, evidencing that they don ́t know what it is to live without experiencing the illness. The chronic illness leads the child to try to understand the situation and to cooperate with the treatment. It may promote the development of onerous feelings like fear, shame, sadness, and doubts concerning the past, present, and future. DESCRIPTORS: Chronic disease. Child hospitalized. Pediatric nursing. LOS NIÑOS EN EDAD ESCOLAR HOSPITALIZADOS: EL SIGNIFICADO DE LA CONDICIÓN CRÓNICA RESUMEN: El objetivo del presente artículo es comprender el significado de la enfermedad crónica para los niños en edad escolar. Se trata de una investigación cualitativa, exploratoria y descriptiva, desarrollada en la Clínica Pediátrica de un Hospital Universitario. Los participantes fueron siete niños con enfermedades crónicas, de siete a doce años de edad. Los datos se recolectaron a través de entrevista semi-estructurada, según los principios del análisis temático. Los resultados revelaron que los niños sienten la enfermedad crónica como algo que impone limitaciones y dificultades en su vida diaria. Hubo informes de niños que mostraron comprensión de la enfermedad como algo normal, demostrando que no saben cómo vivir sin la enfermedad. La enfermedad crónica lleva al niño a esforzarse por tratar de comprender la situación y cooperar con el tratamiento, y puede promover el desarrollo de sentimientos, tales como: miedo, vergüenza, dolor y preguntas sobre el pasado, presente y futuro. DESCRIPTORES: Enfermedad crónica. Niño hospitalizado. Enfermería pediátricaThis study aimed to better understand the meaning of chronic disease for school-age children. It involves qualitative, descriptive, and exploratory research. The field-research was performed in a pediatric clinic of a University Hospital in Brazil. Seven pediatric inpatients in the aforementioned institution with chronic illness, aged seven to twelve years of age participated in the study. The data was collected via semi-structured interviews and followed thematic interpretation principles. The results showed that these children experience chronic disease as something which imposes limitations and difficulties on their daily lives. However, there have been reports of children showing the understanding of disease as something normal, evidencing that they dont know what it is to live without experiencing the illness. The chronic illness leads the child to try to understand the situation and to cooperate with the treatment. It may promote the development of onerous feelings like fear, shame, sadness, and doubts concerning the past, present, and future. DESCRIPTORS: Chronic disease. Child hospitalized. Pediatric nursing.

Enfrentamento do adolescente em condição crônica: importância da rede social

This study aimed at investigating the influence of social network on adolescent coping with chronic conditions. Qualitative research whose subjects were hospitalized adolescents who had a diagnosis of chronic disease for at least one year. Data were collected through semi-structured interview and depositions were submitted to thematical analyses. This research highlights that the chronic condition in adolescence brings substantial effects on their lives. Friends, teachers and health professionals are part of the social network. To promote autonomy it is necessary to include adolescents in care planning and to have a social network that supports them in various demands in different stages of illness.

Hospitalized school-age children: the meaning of a chronic condition

This study aimed to better understand the meaning of chronic disease for school-age children. It involves qualitative, descriptive, and exploratory research. The field-research was performed in a pediatric clinic of a University Hospital in Brazil. Seven pediatric inpatients in the aforementioned institution with chronic illness, aged seven to twelve years of age participated in the study. The data was collected via semi-structured interviews and followed thematic interpretation principles. The results showed that these children experience chronic disease as something which imposes limitations and difficulties on their daily lives. However, there have been reports of children showing the understanding of disease as something normal, evidencing that they don ́t know what it is to live without experiencing the illness. The chronic illness leads the child to try to understand the situation and to cooperate with the treatment. It may promote the development of onerous feelings like fear, shame, sadness, and doubts concerning the past, present, and future. DESCRIPTORS: Chronic disease. Child hospitalized. Pediatric nursing. LOS NIÑOS EN EDAD ESCOLAR HOSPITALIZADOS: EL SIGNIFICADO DE LA CONDICIÓN CRÓNICA RESUMEN: El objetivo del presente artículo es comprender el significado de la enfermedad crónica para los niños en edad escolar. Se trata de una investigación cualitativa, exploratoria y descriptiva, desarrollada en la Clínica Pediátrica de un Hospital Universitario. Los participantes fueron siete niños con enfermedades crónicas, de siete a doce años de edad. Los datos se recolectaron a través de entrevista semi-estructurada, según los principios del análisis temático. Los resultados revelaron que los niños sienten la enfermedad crónica como algo que impone limitaciones y dificultades en su vida diaria. Hubo informes de niños que mostraron comprensión de la enfermedad como algo normal, demostrando que no saben cómo vivir sin la enfermedad. La enfermedad crónica lleva al niño a esforzarse por tratar de comprender la situación y cooperar con el tratamiento, y puede promover el desarrollo de sentimientos, tales como: miedo, vergüenza, dolor y preguntas sobre el pasado, presente y futuro. DESCRIPTORES: Enfermedad crónica. Niño hospitalizado. Enfermería pediátricaThis study aimed to better understand the meaning of chronic disease for school-age children. It involves qualitative, descriptive, and exploratory research. The field-research was performed in a pediatric clinic of a University Hospital in Brazil. Seven pediatric inpatients in the aforementioned institution with chronic illness, aged seven to twelve years of age participated in the study. The data was collected via semi-structured interviews and followed thematic interpretation principles. The results showed that these children experience chronic disease as something which imposes limitations and difficulties on their daily lives. However, there have been reports of children showing the understanding of disease as something normal, evidencing that they dont know what it is to live without experiencing the illness. The chronic illness leads the child to try to understand the situation and to cooperate with the treatment. It may promote the development of onerous feelings like fear, shame, sadness, and doubts concerning the past, present, and future. DESCRIPTORS: Chronic disease. Child hospitalized. Pediatric nursing.

Fragilidade da rede social de famílias de crianças com doença crônica

Chronic disease in childhood affects the family social relations. The social network can contribute for a better coping by giving support. This work aims to analyze the fragilities of the social network of families in this condition. It is a qualitative study conducted in a public hospital of Paraíba, from April to June 2011, using genogram, ecomap and semi-structured interview with seven family members of children with chronic disease. The thematic analysis of the results helped to characterize the network and understand the social interactions in the course of the disease and the types of support received. The empirical category (dis)articulation of the social network and the modifications in family routine was built in this process and pointed the diversity of the social network composition, emphasizing that the social support provided by the network is significant, however, not always continuous and suitable with the needs of the families.La enfermedad cronica en la ninez afecta las relaciones sociales familiares. La red social podra contribuir para un mejor enfrentamiento cuando ofrece apoyo. Se objetivo analizar las fragilidades de la red social de familias de ninos con enfermedad cronica. Se trata de una investigacion cualitativa, realizada en un hospital publico de Paraiba, en el periodo de abril a junio de 2011, utilizando genograma, ecomapa y entrevista semiestructurada con siete familiares de ninos con enfermedades cronicas. El analisis tematico de los resultados posibilito caracterizar la red y aprehender las interacciones sociales en la trayectoria de la enfermedad y los tipos de apoyo que recibieron. La categoria empirica (des)articulacion de dicha red y las modificaciones en la rutina de la familia, fue construida en ese proceso y apunto la diversidad de la composicion de dicha red, evidenciando que el apoyo social fornecido por la red supradicha es significativo, sin embargo, no siempre es continuo y condicente con las necesidades de las familias.

Classe hospitalar: produção do conhecimento em saúde e educação

Realizamos uma revisao integrativa da literatura cujo objetivo foi analisar a producao cientifica sobre classe hospitalar, a fim de descrever a tematica e os aspectos abordados nos estudos publicados. Realizou-se uma revisao referente a producao do conhecimento da saude e da educacao no campo da escolarizacao de criancas e adolescentes hospitalizados, em bases de dados indexadas utilizando as palavras chave: crianca hospitalizada, educacao especial, adolescente hospitalizado, classe hospitalar e educacao e saude. Posteriormente, foi feita leitura flutuante dos titulos, resumos e textos na integra, e os artigos que compreendiam o objeto do estudo foram selecionados totalizando 13 estudos. Para analise, primeiramente fez-se uma caracterizacao das publicacoes com a finalidade de identificar os autores, o ano, a area de atuacao e o percurso metodologico. Posteriormente, realizou-se leituras exaustivas dos artigos de modo a abstrair seus conteudos comuns e agrupa-los em tres Abordagens Tematicas: Classe Hospitalar e Aspectos Administrativos Institucionais, Classe Hospitalar e Processo de Hospitalizacao, e Pratica Pedagogica na Classe Hospitalar. Apesar da producao do conhecimento nesta area apresentar-se ainda timida em periodicos indexados, as pesquisas confirmam que a classe hospitalar se configura numa estrategia pedagogica que possibilita o atendimento educacional especializado que contribui para o retorno e continuidade da escolarizacao formal e para o desenvolvimento infantil. Ainda sao poucos os profissionais qualificados para atuar na classe hospitalar devido a inexistencia de uma formacao especifica nesta area. Identificamos lacunas importantes em relacao as informacoes oficiais sobre classes hospitalares, inviabilizando conhecer a real dimensao e distribuicao dessas atividades no Brasil e no mundo.

Family knowledgeabout the chronic condition in childhood

The objective of this qualitative study was to identify the knowledge from the family about the chronic condition in childhood, as well as specific care to be given in their home. The data was collected at the pediatric clinic of the Lauro Wanderley University Hospital in Brazil, involving seven care takers of children diagnosed with a chronic disease between January and April of 2008. The collection technique was the semi-structured interview. Data interpretation followed the thematic analysis method. The results reveal that the information given to the family has been given in a very subtle way and the mothers feel difficulties in learning the orientations, given the technical and specific medical vocabulary. This impedes the development of autonomy in their administration of care for the child who has a chronic disease. Mothers’ knowledge about their child’s disease is not enough for the development of home care. The health team needs to interact with the family, creating the domino effect towards a process of autonomous home care. DEsCRIPTORs: Child hospitalized. Chronic disease. Family. CONOCIMIENTO DE LA FAMILIA sOBRE LA CONDICION CRONICA EN LA INFANCIA REsuMEN: Investigacion cualitativa que tuvo como objetivo identificar el conocimiento de la familia acerca de la patologia cronica en la infancia y de los cuidados especificos que deben ser realizados en el domicilio. Los datos fueron recolectados en la clinica pediatrica del Hospital Universitario Lauro Wanderley con siete acompanantes de los ninos con diagnostico de enfermedad cronica, entre enero y abril de 2008. La tecnica de recoleccion fue la entrevista semiestructurada. La interpretacion de los datos sigue el metodo de analisis tematico. Los resultados revelan que las informaciones a las familias han ocurrido de forma sutil y las madres sienten dificultades en asimilar las orientaciones, ya que ellas poseen un contenido tecnico y especifico del vocabulario medico, imposibilitando el desarrollo de la autonomia en el cuidado con el nino portador de enfermedad cronica. El conocimiento de las madres acerca de la enfermedad del nino no es suficiente para el desarrollo del cuidado en el domicilio. El equipo de salud necesita interactuar con la familia desencadenando un proceso de autonomia para el cuidado en el domicilio. DEsCRIPTOREs: Nino hospitalizado. Enfermedad cronica. Familia.

Fragility of the social network of families of children with chronic disease

Chronic disease in childhood affects the family social relations. The social network can contribute for a better coping by giving support. This work aims to analyze the fragilities of the social network of families in this condition. It is a qualitative study conducted in a public hospital of Paraíba, from April to June 2011, using genogram, ecomap and semi-structured interview with seven family members of children with chronic disease. The thematic analysis of the results helped to characterize the network and understand the social interactions in the course of the disease and the types of support received. The empirical category (dis)articulation of the social network and the modifications in family routine was built in this process and pointed the diversity of the social network composition, emphasizing that the social support provided by the network is significant, however, not always continuous and suitable with the needs of the families.La enfermedad cronica en la ninez afecta las relaciones sociales familiares. La red social podra contribuir para un mejor enfrentamiento cuando ofrece apoyo. Se objetivo analizar las fragilidades de la red social de familias de ninos con enfermedad cronica. Se trata de una investigacion cualitativa, realizada en un hospital publico de Paraiba, en el periodo de abril a junio de 2011, utilizando genograma, ecomapa y entrevista semiestructurada con siete familiares de ninos con enfermedades cronicas. El analisis tematico de los resultados posibilito caracterizar la red y aprehender las interacciones sociales en la trayectoria de la enfermedad y los tipos de apoyo que recibieron. La categoria empirica (des)articulacion de dicha red y las modificaciones en la rutina de la familia, fue construida en ese proceso y apunto la diversidad de la composicion de dicha red, evidenciando que el apoyo social fornecido por la red supradicha es significativo, sin embargo, no siempre es continuo y condicente con las necesidades de las familias.

PROCESSO DE ENFERMAGEM AO ADOLESCENTE HOSPITALIZADO PORTADOR DE ANEMIA FALCIFORME

Nursing care systematization (NCS) as a tool in the care of hospitalized adolescent is still underutilized by nurses in their routine. The objective was to apply an instrument of NCS, which comprises the steps of the nursing process to a teenager hospitalized with a diagnosis of sickle cell anemia. This instrument is based on basic human needs of Horta, which underlie the process of NCS used in the study hospital. NCS is composed of five phases: Historical nursing, nursing diagnoses, planning, intervention, and evolution. The diagnosis of a more severe general condition was pain, and care for the adolescent in pain relief has contributed to the achievement of results. The use of the instrument serves as a guide for the NCS to the hospitalized adolescent, allowing documentation of the actions clearly and objectively, facilitating communication and continuing care. DESCRIPTORS: Nursing Care. Teen. Nursing Process.

Nurses Records in Medical Records of a School Hospital

Objective: Describe the characteristics of the evolution of nurses in the medical records of patients admitted to a school hospital in the city of Joao Pessoa, PB, Brazil. Methods: This is a descriptive, exploratory and documental, embodied in a quantitative approach. The source of study data were the records of patients of the Pediatric Clinic of Infectious and Parasitic Diseases (IPD), who were in the Statistical and Medical Archive Service (SMAS), in a time frame from April to October 2015. The analysis the data was performed, from the descriptive statistics, using a statistical software. Results: Through the data collected, two characteristics were observed in the records: the general aspects and the focus of care. In general aspects, the developments were characterized as being absent from erasures, use of correctives, grammatical errors, non-standard abbreviations and generic terms. They proved to be legible and clear, using scientific terminology, the date and time stamp. However, it was found that there are many blanks. As the focus of care, the records contemplated the general condition, level of consciousness, respiratory pattern and eliminations. Conclusions: Based on the foregoing, the concreteness of this study shows us that nurses need to be aware in order to provide a more qualified registration and, above all, standardized, ensuring continuity of care and promoting the evaluation of the implemented care.