Aline Campelo Pintanel

Face singular do cuidado familiar à criança portadora do vírus HIV/AIDS

Objective: To understand the lived experience of the family in caring for children with the HIV/AIDS virus. Methods: The study was conducted in a university hospital in the first semester of 2010. Participants included seven family caregivers. Data were collected through semi-structured interviews and analyzed using thematic analysis. Results: There was evidence of a silencing of the diagnosis by the family caregiver whose life function became that of caregiver for the child. In terms of difficulties for care, these included: the health conditions of the mother or her death; hospitalizations that compromised schooling and reveaed the diagnosis; and fear of telling the diagnosis to the child. Conclusion: It is believed that health/nursing professionals need to employ strategies that enable these families to better cope with everyday life, advising them about care, providing information on HIV/AIDS to people in their social circle, and diminishing stigma and discrimination to which theseObjective: To understand the lived experience of the family in caring for children with the HIV/AIDS virus. Methods: The study was conducted in a university hospital in the first semester of 2010. Participants included seven family caregivers. Data were collected through semi-structured interviews and analyzed using thematic analysis. Results: There was evidence of a silencing of the diagnosis by the family caregiver whose life function became that of caregiver for the child. In terms of difficulties for care, these included: the health conditions of the mother or her death; hospitalizations that compromised schooling and reveaed the diagnosis; and fear of telling the diagnosis to the child. Conclusion: It is believed that health/nursing professionals need to employ strategies that enable these families to better cope with everyday life, advising them about care, providing information on HIV/AIDS to people in their social circle, and diminishing stigma and discrimination to which these

A família na Unidade de Pediatria: convivendo com normas e rotinas hospitalares

The study aimed to know, in Foucaults view, how the family caregiver of the child deals with the rules and routines in the hospital. Descriptive qualitative study, conducted in the second half of 2011. It had the Grounded Theory as methodological framework. It was developed in the pediatric unit of a university hospital in southern Brazil, with eighteen family caregivers. The data collection was performed by semi-structured interviews and the analysis through open, axial and selective coding. It was noticed that the family tends to conform to such rules and routines in the hospital, but recognizes the importance of its flexibility, exercising endurance, as dialoguing, or as trespassing such rules and routines, in search of autonomy, when they realize that these do not address their needs. It is important to use rules and routines to enable the family practices and spaces of freedom, autonomy and resistance.Objetivou-se conhecer, na visao foucaultiana, como o familiar cuidador da crianca convive com as normas e rotinas no hospital. Estudo descritivo com abordagem qualitativa, realizado no segundo semestre de 2011. Teve como referencial metodologico a Teoria Fundamentada nos Dados. Foi desenvolvido na Unidade de Pediatria de um Hospital Universitario no sul do Brasil, com dezoito familiares cuidadores. A coleta de dados foi realizada por entrevistas semiestruturadas e a analise, atraves da codificacao aberta, axial e seletiva. Percebeu-se que a familia tende a submeter-se as normas e rotinas no hospital, mas reconhece a importância de sua flexibilizacao, exercendo resistencia, seja dialogando, seja transgredindo, em busca de autonomia, quando percebem que essas nao contemplam suas necessidades. Torna-se importante o uso de normas e rotinas que possibilitem a familia praticas e espacos de liberdade, autonomia e resistencia.

Mães de crianças com deficiência visual: dificuldades e facilidades enfrentadas no cuidado

Objetivou-se conhecer as dificuldades e facilidades enfrentadas pelas maes de criancas com deficiencia visual (DV) no cuidado. Trata-se de uma pesquisa qualitativa, descritiva, realizada no segundo semestre de 2011, com dez maes de criancas com deficiencia visual, de um Centro de Educacao para deficientes visuais, no sul do Brasil. Foram realizadas entrevistas semiestruturadas e analise de conteudo tematica das informacoes. Foram verificados como dificuldades o desconhecimento acerca da doenca e da forma de cuidar da crianca, a falta de acesso aos servicos de saude, a sobrecarga pela dependencia da crianca, a falta de apoio e o preconceito na propria familia. Quanto as facilidades, foram referidos a vontade do desenvolvimento saudavel das criancas, a convivencia com profissionais qualificados para sua educacao e o contato com outras criancas com DV. Faz-se importante a instrumentalizacao da familia para o cuidado a crianca com DV como forma de garantir a aquisicao de habilidades e competencias, possibilitando-a um viver com qualidade.This study aimed to identify the difficult and easy aspects faced by mothers of visually impaired (VI) children in their care. It is a descriptive qualitative study, developed in the second semester of 2011, with ten mothers of children with visual impairment from an Educational Center for the Visually Impaired located in southern Brazil. Data were collected by means of semistructured interviews and submitted to thematic content analysis. The identified difficulties were the lack of knowledge regarding the disease and how to take care of the child, the lack of access to health services, overload generated by the dependence of the child and lack of support and prejudice within their own family. The easy aspects involved the desire for the childs healthy development the chance of being in touch with qualified professionals for their education, and the contact with other VI children. Therefore, it is important to qualify the family for the care of VI children so as to ensure the development of skills and competencies enabling them to live with quality.

Mothers of visually impaired children: difficult and easy aspects faced in care

Objetivou-se conhecer as dificuldades e facilidades enfrentadas pelas maes de criancas com deficiencia visual (DV) no cuidado. Trata-se de uma pesquisa qualitativa, descritiva, realizada no segundo semestre de 2011, com dez maes de criancas com deficiencia visual, de um Centro de Educacao para deficientes visuais, no sul do Brasil. Foram realizadas entrevistas semiestruturadas e analise de conteudo tematica das informacoes. Foram verificados como dificuldades o desconhecimento acerca da doenca e da forma de cuidar da crianca, a falta de acesso aos servicos de saude, a sobrecarga pela dependencia da crianca, a falta de apoio e o preconceito na propria familia. Quanto as facilidades, foram referidos a vontade do desenvolvimento saudavel das criancas, a convivencia com profissionais qualificados para sua educacao e o contato com outras criancas com DV. Faz-se importante a instrumentalizacao da familia para o cuidado a crianca com DV como forma de garantir a aquisicao de habilidades e competencias, possibilitando-a um viver com qualidade.This study aimed to identify the difficult and easy aspects faced by mothers of visually impaired (VI) children in their care. It is a descriptive qualitative study, developed in the second semester of 2011, with ten mothers of children with visual impairment from an Educational Center for the Visually Impaired located in southern Brazil. Data were collected by means of semistructured interviews and submitted to thematic content analysis. The identified difficulties were the lack of knowledge regarding the disease and how to take care of the child, the lack of access to health services, overload generated by the dependence of the child and lack of support and prejudice within their own family. The easy aspects involved the desire for the childs healthy development the chance of being in touch with qualified professionals for their education, and the contact with other VI children. Therefore, it is important to qualify the family for the care of VI children so as to ensure the development of skills and competencies enabling them to live with quality.

Meanings attributed by family members in pediatrics regarding their interactions with nursing professionals

OBJECTIVE Understanding the meanings attributed by family caregivers of children in hospital environments about their interactions with nursing professionals. METHODS This qualitative study used Symbolic Interactionism as a theoretical reference and Grounded Theory as the methodological framework. It was carried out in a Pediatrics Center in southern Brazil, in the first half of 2013. Participants were 15 family caregivers of hospitalized children. Data were collected through interviews and submitted to open and axial analysis. RESULTS Interactions with the nursing team enable family to trust or distrust in the provided child care and to positively evaluate the care received. CONCLUSION Interactions between family members and the nursing team contribute to the significance attributed by the family to the nursing care received by the child. Nurses should be aware of the attitudes of the nursing team regarding the child and their family, prioritizing humanized care.

The family in the Pediatric Unit: living with rules and hospital routines

The study aimed to know, in Foucaults view, how the family caregiver of the child deals with the rules and routines in the hospital. Descriptive qualitative study, conducted in the second half of 2011. It had the Grounded Theory as methodological framework. It was developed in the pediatric unit of a university hospital in southern Brazil, with eighteen family caregivers. The data collection was performed by semi-structured interviews and the analysis through open, axial and selective coding. It was noticed that the family tends to conform to such rules and routines in the hospital, but recognizes the importance of its flexibility, exercising endurance, as dialoguing, or as trespassing such rules and routines, in search of autonomy, when they realize that these do not address their needs. It is important to use rules and routines to enable the family practices and spaces of freedom, autonomy and resistance.Objetivou-se conhecer, na visao foucaultiana, como o familiar cuidador da crianca convive com as normas e rotinas no hospital. Estudo descritivo com abordagem qualitativa, realizado no segundo semestre de 2011. Teve como referencial metodologico a Teoria Fundamentada nos Dados. Foi desenvolvido na Unidade de Pediatria de um Hospital Universitario no sul do Brasil, com dezoito familiares cuidadores. A coleta de dados foi realizada por entrevistas semiestruturadas e a analise, atraves da codificacao aberta, axial e seletiva. Percebeu-se que a familia tende a submeter-se as normas e rotinas no hospital, mas reconhece a importância de sua flexibilizacao, exercendo resistencia, seja dialogando, seja transgredindo, em busca de autonomia, quando percebem que essas nao contemplam suas necessidades. Torna-se importante o uso de normas e rotinas que possibilitem a familia praticas e espacos de liberdade, autonomia e resistencia.

Lifeworld: socio-environmental influence on crack cocaine use by teenagers

OBJECTIVE To understand the influence of the lifeworld on crack cocaine use by teenagers undergoing treatment at the Psychosocial Care Center for users of alcohol and other drugs. METHOD Qualitative research carried out with thirteen teenagers attended at the Psychosocial Care Center for users of alcohol and other drugs, from a municipality in the South of Brazil. The data were collected through semi-structured interviews and the Comprehensive Analysis was carried out from the Phenomenology of the Social World of Alfred Schütz. RESULTS In the lifeworld, there is influence of the community to which the teenager belongs; of the family, by the excess of permissibility and being in an environment of drug use and violence; and the school, where it is influenced by individuals to consume them. CONCLUSION Elements from the lifeworld influence the teenager for the consumption of crack cocaine, being necessary actions contextualized with their world of life.

Significados atribuidos por familiares en la pediatría acerca de sus interacciones con los profesionales de la enfermería

OBJECTIVE Understanding the meanings attributed by family caregivers of children in hospital environments about their interactions with nursing professionals. METHODS This qualitative study used Symbolic Interactionism as a theoretical reference and Grounded Theory as the methodological framework. It was carried out in a Pediatrics Center in southern Brazil, in the first half of 2013. Participants were 15 family caregivers of hospitalized children. Data were collected through interviews and submitted to open and axial analysis. RESULTS Interactions with the nursing team enable family to trust or distrust in the provided child care and to positively evaluate the care received. CONCLUSION Interactions between family members and the nursing team contribute to the significance attributed by the family to the nursing care received by the child. Nurses should be aware of the attitudes of the nursing team regarding the child and their family, prioritizing humanized care.

Significados atribuídos por familiares na pediatria acerca de suas interações com os profissionais da enfermagem

OBJECTIVE Understanding the meanings attributed by family caregivers of children in hospital environments about their interactions with nursing professionals. METHODS This qualitative study used Symbolic Interactionism as a theoretical reference and Grounded Theory as the methodological framework. It was carried out in a Pediatrics Center in southern Brazil, in the first half of 2013. Participants were 15 family caregivers of hospitalized children. Data were collected through interviews and submitted to open and axial analysis. RESULTS Interactions with the nursing team enable family to trust or distrust in the provided child care and to positively evaluate the care received. CONCLUSION Interactions between family members and the nursing team contribute to the significance attributed by the family to the nursing care received by the child. Nurses should be aware of the attitudes of the nursing team regarding the child and their family, prioritizing humanized care.

La familia en la Unidad Pediátrica: viviendo con reglas y rutinas del hospital

The study aimed to know, in Foucaults view, how the family caregiver of the child deals with the rules and routines in the hospital. Descriptive qualitative study, conducted in the second half of 2011. It had the Grounded Theory as methodological framework. It was developed in the pediatric unit of a university hospital in southern Brazil, with eighteen family caregivers. The data collection was performed by semi-structured interviews and the analysis through open, axial and selective coding. It was noticed that the family tends to conform to such rules and routines in the hospital, but recognizes the importance of its flexibility, exercising endurance, as dialoguing, or as trespassing such rules and routines, in search of autonomy, when they realize that these do not address their needs. It is important to use rules and routines to enable the family practices and spaces of freedom, autonomy and resistance.Objetivou-se conhecer, na visao foucaultiana, como o familiar cuidador da crianca convive com as normas e rotinas no hospital. Estudo descritivo com abordagem qualitativa, realizado no segundo semestre de 2011. Teve como referencial metodologico a Teoria Fundamentada nos Dados. Foi desenvolvido na Unidade de Pediatria de um Hospital Universitario no sul do Brasil, com dezoito familiares cuidadores. A coleta de dados foi realizada por entrevistas semiestruturadas e a analise, atraves da codificacao aberta, axial e seletiva. Percebeu-se que a familia tende a submeter-se as normas e rotinas no hospital, mas reconhece a importância de sua flexibilizacao, exercendo resistencia, seja dialogando, seja transgredindo, em busca de autonomia, quando percebem que essas nao contemplam suas necessidades. Torna-se importante o uso de normas e rotinas que possibilitem a familia praticas e espacos de liberdade, autonomia e resistencia.