Andréia Burille

Rede social e vínculos apoiadores das famílias de crianças com câncer

This study sought to know the support bonds and the social network of the families that have a child with cancer in their context. It is an exploratory, descriptive investigation made with a qualitative approach. Six family members participated in the study, two from each of the children with cancer hospitalized in the Onco-Hematology Unit of the Joana de Gusmao Childrens Hospital in Florianopolis, Santa Catarina, Brazil. The data was collected using semi-structured interviews carried out from May to June of 2006. In order to organize the results, thematic analysis was used. The results revealed that the family seeks to organize itself in order to deal with the disease, resulting in a strengthening of family bonds and respective support networks. Religion appears as a strategy to handle situations which arise from cancer. However, it became clear that the disease can also weaken the previously established bonds. DESCRIPTORS: Family. Child. Cancer. Nursing. Social support.

Social network and support bonds of the families of children with cancer

This study sought to know the support bonds and the social network of the families that have a child with cancer in their context. It is an exploratory, descriptive investigation made with a qualitative approach. Six family members participated in the study, two from each of the children with cancer hospitalized in the Onco-Hematology Unit of the Joana de Gusmao Childrens Hospital in Florianopolis, Santa Catarina, Brazil. The data was collected using semi-structured interviews carried out from May to June of 2006. In order to organize the results, thematic analysis was used. The results revealed that the family seeks to organize itself in order to deal with the disease, resulting in a strengthening of family bonds and respective support networks. Religion appears as a strategy to handle situations which arise from cancer. However, it became clear that the disease can also weaken the previously established bonds. DESCRIPTORS: Family. Child. Cancer. Nursing. Social support.

The support bonds as strategy of the families to work with the chronic renal disease and the treatment

ABSTRACT Objective: to present the support bonds as strategies used by the families to deal with the chronic renal disease. Methodology: this is about an exploratory and descriptive research from qualitative approach, supported in Bronfenbrenners Bioecological Model, accomplished in the period from May 2004 to June 2005 in a hemodyalisis unit of a city of South of Brazil. Ten patient’s relatives in hemodyalitic treatment participated in the study and answered to a semistructured interview. The study was approved by the Research Ethics Committee of the School of Medicine of a university from the south of Brazil (protocol number 038/2004). Results: it was evidenced that the relatives try to establish several support bonds as strategies to work with the renal disease, among them, to involve the sick relative in the decisions of the family, to support him, to give attention and affection. They also look for support in the net of social support. Final considerations: it is essential that nursing knows the support bonds used by the families that are living getting sick, because like this,it can better attend them. Descriptors: family; nursing; hemodyalisis; social support. RESUMO Objetivo : apresentar os vinculos apoiadores como estrategias utilizadas pelas familias para lidar com a doenca renal cronica. Metodologia : pesquisa exploratoria e descritiva com abordagem qualitativa, apoiada no Modelo Bioecologico de Bronfenbrenner, realizada no periodo de maio de 2004 a junho de 2005 em uma unidade de hemodialise de uma cidade do Sul do Brasil. Participaram do estudo 10 familiares de clientes em tratamento que responderam a uma entrevista semi-estruturada. O estudo foi aprovado pelo Comite de Etica em Pesquisa da Faculdade de Medicina de uma Universidade do Sul do Brasil (numero do protocolo 038/2004). Resultados : foi evidenciado que os familiares procuram estabelecer diversas estrategias para lidar com a doenca renal, entre elas, envolver o familiar adoecido nas decisoes da familia, apoia-lo, dar atencao e carinho. Tambem buscam suporte na rede social. Consideracoes finais : e essencial que a enfermagem conheca os vinculos apoiadores utilizados pelas familias que estao vivenciando o adoecer, pois assim, podera melhor assistir. Descritores: familia; enfermagem; hemodialise; apoio social. RESUMEN Objetivo: presentar los vinculos de apoyo como las estrategias utilizadas por las familias para hacer frente a la enfermedad renal cronica. Metodologia: investigacion exploratoria y descriptiva, con abordaje cualitativa, apoyado en el modelo bioecologico de Bronfenbrenner, llevada a cabo entre mayo de 2004 al junio de 2005 en una unidad de hemodialisis en una ciudad del sur de Brasil. El estudio incluyo a 10 miembros de la familia de clientes en hemodialisis que respondieron a una entrevista semi-estructurada. El estudio fue aprobado por el Comite de Etica en Investigacion de la Facultad de Medicina de una universidad del sur de Brasil (numero del protocolo 038/2004). Resultados: se evidencio que la familia trataba de establecer diversos vinculos de apoyo de estrategias para lidiar con la enfermedad renal, cuales sean, envolver el enfermo en las decisiones de la familia, dar le apoyo, atencion y afecto. Tambien buscan suporte en la red de apoyo social. Conclusion: es esencial para la enfermeria conocer los vinculos de apoyo utilizados por las familias que sufren la enfermedad, porque eso puede mejor ayudar a ellas. Descriptores: familia; enfermeria; hemodialisis; apoyo social.

Los vínculos y la red de apoyo social a las familias de niños con cáncer

This study sought to know the support bonds and the social network of the families that have a child with cancer in their context. It is an exploratory, descriptive investigation made with a qualitative approach. Six family members participated in the study, two from each of the children with cancer hospitalized in the Onco-Hematology Unit of the Joana de Gusmao Childrens Hospital in Florianopolis, Santa Catarina, Brazil. The data was collected using semi-structured interviews carried out from May to June of 2006. In order to organize the results, thematic analysis was used. The results revealed that the family seeks to organize itself in order to deal with the disease, resulting in a strengthening of family bonds and respective support networks. Religion appears as a strategy to handle situations which arise from cancer. However, it became clear that the disease can also weaken the previously established bonds. DESCRIPTORS: Family. Child. Cancer. Nursing. Social support.