Ane Caroline da Cruz Santos

Experiências do adoecimento de pessoas com anemia falciforme e estratégias de autocuidado

ObjectiveTo determine the experience of sick individuals with sickle cell anemia and their self-care strategies.MethodsThis was a qualitative study of 17 individuals with sickle cell anemia. Data collection and analysis occurred simultaneously by open codification and categorization, according to steps in the theory based on data. This procedure led to the development of categories related to the experience of individuals who have sickle cell anemia and their self-care.ResultsExperiences of patients who became chronically ill enabled the construction of strategies to better determine the disease, changes in daily life, and the manner in which it affects how patients observe and experience time. Also identified were specific skills for self-care that were developed from lessons learned and mistakes made.ConclusionWe found that individuals with sickle cell anemia had several favorable approaches for adapting to having become sick during adulthood.

The illness of women and men with sickle cell disease: a Grounded Theory study

Objetivo: comprender los significados atribuidos por mujeres y hombres con anemia de celulas falciformes a la experiencia del proceso de enfermar. Metodo : se trata de un estudio analitico, con un enfoque cualitativo y realizado con 17 adultos con anemia falciforme, basado en la Teoria Fundamentada en los Datos, la Grounded Theory, como referencia teorica y metodologica. Los datos fueron recogidos entre los anos 2012 y 2013 mediante una entrevista individual en profundidad. Todas las entrevistas fueron grabadas y analizadas segun la tecnica de analisis comparativo de la Grounded Theory. Resultados: los datos revelaron cuatro categorias que agrupan la experiencia de la enfermedad, los sentimientos vividos y la trayectoria de la convivencia con la anemia falciforme. Conclusiones: fue posible comprender que la experiencia se construye mediante un proceso en el que estas personas son capaces de replantear, imprimir nuevos rumbos a la vida y al cuidado en la experiencia de la enfermedad. La atencion de la enfermeria en el contexto de una enfermedad cronica tambien se observa en este estudio como base que da atencion, orienta y lleva a cabo las confrontaciones necesarias. La comprension de la experiencia vivida por estas personas hace posible ampliar las dimensiones y la esencia de los cuidados de enfermeria requeridos por toda la vidaObjective: to understand the meanings given by women and men with sickle cell disease on the illness experience. Method: analytical study with a qualitative approach, conducted with 17 adults with sickle cell disease using the Theory Based on Data, or Grounded Theory, as theoretical-methodological referential. Data were collected between the years of 2012 and 2013, in an individual in-depth interview. All the interviews were recorded and analyzed according to the Grounded Theory comparative analysis technique. Results: data show four categories which group the experience of illness, the feelings experienced and the path to living with sickle cell disease. Conclusions: it was possible to understand that the experience was built by a process in which these people redefined the meaning of their lives, applying new directions to life and to care regarding the experience of the illness. In the context of chronic disease, the nurses care is also seen in this study as a foundation, providing attention, directions, and guidance through the required confrontations. Understanding the experience lived by these people, it is possible to enlarge the dimensions and the essence of nursing care required throughout life.

O adoecimento de mulheres e homens com anemia falciforme: um estudo de Grounded Theory

Objetivo: comprender los significados atribuidos por mujeres y hombres con anemia de celulas falciformes a la experiencia del proceso de enfermar. Metodo : se trata de un estudio analitico, con un enfoque cualitativo y realizado con 17 adultos con anemia falciforme, basado en la Teoria Fundamentada en los Datos, la Grounded Theory, como referencia teorica y metodologica. Los datos fueron recogidos entre los anos 2012 y 2013 mediante una entrevista individual en profundidad. Todas las entrevistas fueron grabadas y analizadas segun la tecnica de analisis comparativo de la Grounded Theory. Resultados: los datos revelaron cuatro categorias que agrupan la experiencia de la enfermedad, los sentimientos vividos y la trayectoria de la convivencia con la anemia falciforme. Conclusiones: fue posible comprender que la experiencia se construye mediante un proceso en el que estas personas son capaces de replantear, imprimir nuevos rumbos a la vida y al cuidado en la experiencia de la enfermedad. La atencion de la enfermeria en el contexto de una enfermedad cronica tambien se observa en este estudio como base que da atencion, orienta y lleva a cabo las confrontaciones necesarias. La comprension de la experiencia vivida por estas personas hace posible ampliar las dimensiones y la esencia de los cuidados de enfermeria requeridos por toda la vidaObjective: to understand the meanings given by women and men with sickle cell disease on the illness experience. Method: analytical study with a qualitative approach, conducted with 17 adults with sickle cell disease using the Theory Based on Data, or Grounded Theory, as theoretical-methodological referential. Data were collected between the years of 2012 and 2013, in an individual in-depth interview. All the interviews were recorded and analyzed according to the Grounded Theory comparative analysis technique. Results: data show four categories which group the experience of illness, the feelings experienced and the path to living with sickle cell disease. Conclusions: it was possible to understand that the experience was built by a process in which these people redefined the meaning of their lives, applying new directions to life and to care regarding the experience of the illness. In the context of chronic disease, the nurses care is also seen in this study as a foundation, providing attention, directions, and guidance through the required confrontations. Understanding the experience lived by these people, it is possible to enlarge the dimensions and the essence of nursing care required throughout life.

El proceso de enfermar de mujeres y hombres con anemia falciforme: un estudio de Grounded Theory

Objetivo: comprender los significados atribuidos por mujeres y hombres con anemia de celulas falciformes a la experiencia del proceso de enfermar. Metodo : se trata de un estudio analitico, con un enfoque cualitativo y realizado con 17 adultos con anemia falciforme, basado en la Teoria Fundamentada en los Datos, la Grounded Theory, como referencia teorica y metodologica. Los datos fueron recogidos entre los anos 2012 y 2013 mediante una entrevista individual en profundidad. Todas las entrevistas fueron grabadas y analizadas segun la tecnica de analisis comparativo de la Grounded Theory. Resultados: los datos revelaron cuatro categorias que agrupan la experiencia de la enfermedad, los sentimientos vividos y la trayectoria de la convivencia con la anemia falciforme. Conclusiones: fue posible comprender que la experiencia se construye mediante un proceso en el que estas personas son capaces de replantear, imprimir nuevos rumbos a la vida y al cuidado en la experiencia de la enfermedad. La atencion de la enfermeria en el contexto de una enfermedad cronica tambien se observa en este estudio como base que da atencion, orienta y lleva a cabo las confrontaciones necesarias. La comprension de la experiencia vivida por estas personas hace posible ampliar las dimensiones y la esencia de los cuidados de enfermeria requeridos por toda la vidaObjective: to understand the meanings given by women and men with sickle cell disease on the illness experience. Method: analytical study with a qualitative approach, conducted with 17 adults with sickle cell disease using the Theory Based on Data, or Grounded Theory, as theoretical-methodological referential. Data were collected between the years of 2012 and 2013, in an individual in-depth interview. All the interviews were recorded and analyzed according to the Grounded Theory comparative analysis technique. Results: data show four categories which group the experience of illness, the feelings experienced and the path to living with sickle cell disease. Conclusions: it was possible to understand that the experience was built by a process in which these people redefined the meaning of their lives, applying new directions to life and to care regarding the experience of the illness. In the context of chronic disease, the nurses care is also seen in this study as a foundation, providing attention, directions, and guidance through the required confrontations. Understanding the experience lived by these people, it is possible to enlarge the dimensions and the essence of nursing care required throughout life.