Carolliny Rossi de Faria Ichikawa

Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases

Objetivos: realizar la adaptacion cultural del Family Management Measure para el idioma portugues de Brasil. Metodo: el metodo obedecio las recomendaciones internacionales para este tipo de estudio, compuesta por las siguientes etapas: traduccion del instrumento para la lengua portuguesa; obtencion del consenso de las versiones traducidas; evaluacion por el comite de especialistas; retro-traduccion y pre-prueba. Resultados: esas etapas permitieron el alcance de las equivalencias conceptuales de items, semantica, idiomaticas, operacionales y la validacion del contenido. Conclusion: el Family Management Measure se presenta adaptado para el idioma portugues de Brasil ahora denominado de Instrumento de Medida de Manejo Familiar.Objectives to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. Method the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. Results these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. Conclusion the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

The use of the Family Management Style Framework to evaluate the family management of liver transplantation in adolescence

Objetivo: Descrever o comportamento de criancas durante a sessao de brinquedo terapeutico instrucional (BTI) no periodo pre-operatorio e verificar o comportamento apresentado por elas no periodo transoperatorio. Metodo: Pesquisa descritiva exploratoria de abordagem quantitativa, desenvolvida em um hospital particular de grande porte da cidade de Sao Paulo, na qual os comportamentos apresentados por 30 criancas entre tres e cinco anos submetidas a cirurgia de pequeno porte foram observados na unidade de internacao durante a sessao de BT e na sala de cirurgia, desde a admissao ate despertarem da anestesia. Resultados: A maioria participou efetivamente da sessao de BTI (21; 70%), entrou espontaneamente na sala operatoria (22; 73,3%) e sem resistir a separacao da mae (24; 80%), colaborando com o procedimento anestesico (16; 53,3%) e despertando da anestesia tranquilamente (26; 87%).
Conclusao: O uso do BTI propiciou a crianca compreender o procedimento cirurgico, tornando-o menos traumatico.OBJECTIVE To understand the family management experience of liver transplantation during adolescence based on the Family Management Style Framework(FMSF). METHOD This is a case study that used the FMSF as theoretical framework and the hybrid model of thematic analysis as methodological reference. The case presented is from an adolescents family that lives in Salvador, Bahia. The data were collected through interviews with the mother and the patient charts analysis. RESULTS The results shows that the family defines the transplantation as threatening and there are divergence between mother and daughter related to the teens capabilities perception. Facing those discrepancies, the family assumes a protective posture by believing that the teen cannot take care of herself alone. The perceived consequences reflect how much the uncertainty permeates the family environment. CONCLUSION It is concluded that the use of a model to evaluate the management can help professionals to direct and plan specific interventions.

Mães enlutadas: criação de blogs temáticos sobre a perda de um filho

DOI http://dx.doi.org/10.1590/19820194201700019 Universidade Federal do Triângulo Mineiro, Uberaba, MG, Brazil. Escola de Enfermagem, Universidade de São Paulo, São Paulo, SP, Brazil. Conflict of interests: none to report. Abstract Objective: To understand motivations of grieving mothers to create and maintain a blog about the loss of their child. Methods: This was a qualitative study on virtual ethnography from narrative analysis of data obtained from i40 blogs about the loss of a child, according to theory proposed in dual process model of grief. Results: Defined categories were as follows: to share the experience of loss and challenges in moving forward; to create a relationship network to support, comfort, and support other grieving persons; to guarantee a space of refuge to express feelings and emotions in order to overcome loss; to honor and perpetuate the image of the child lost; and to engage in social activism. Conclusion: The expression and validation of grief in blogs help mothers to develop strategies to cope with stressful factors related to the loss.

Adaptação cultural do Family Management Measure para famílias de crianças e adolescentes portadores de doenças crônicas

Objetivos: realizar la adaptacion cultural del Family Management Measure para el idioma portugues de Brasil. Metodo: el metodo obedecio las recomendaciones internacionales para este tipo de estudio, compuesta por las siguientes etapas: traduccion del instrumento para la lengua portuguesa; obtencion del consenso de las versiones traducidas; evaluacion por el comite de especialistas; retro-traduccion y pre-prueba. Resultados: esas etapas permitieron el alcance de las equivalencias conceptuales de items, semantica, idiomaticas, operacionales y la validacion del contenido. Conclusion: el Family Management Measure se presenta adaptado para el idioma portugues de Brasil ahora denominado de Instrumento de Medida de Manejo Familiar.Objectives to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. Method the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. Results these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. Conclusion the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

Validation of Family Management Measure for the Brazilian culture

ETJECTIVE To validate the Family Management Measure (FaMM) for Brazilian culture. METHOD Quantitative research excerpt, following the recommendations for validation studies. The data presented refer to the last stage of the process. RESULTS The internal consistency of the items was analyzed through Cronbachs alpha of the six domains: Childs Daily Life (0.78); Condition Management Effort (0.51); Condition Management Ability (0.55); Family Life Difficulty (0.86); View of Condition Impact (0.56); and Parental Mutuality (0.80). Exploratory factorial analysis of the instrument was carried out, obtaining an acceptable adjustment, according to validation standards. CONCLUSION The FaMM presents evidence of validation and can be used in the Brazilian culture under the name of Instrumento de Medida de Manejo Familiar, which was adjusted in eight domains, providing varied aspects of family management and a good evaluation of the fundamental aspects of family life in the context of childhood chronic conditions.

Adaptación cultural del Family Management Measure para familias de niños y adolescentes portadores de enfermedades crónicas

Objetivos: realizar la adaptacion cultural del Family Management Measure para el idioma portugues de Brasil. Metodo: el metodo obedecio las recomendaciones internacionales para este tipo de estudio, compuesta por las siguientes etapas: traduccion del instrumento para la lengua portuguesa; obtencion del consenso de las versiones traducidas; evaluacion por el comite de especialistas; retro-traduccion y pre-prueba. Resultados: esas etapas permitieron el alcance de las equivalencias conceptuales de items, semantica, idiomaticas, operacionales y la validacion del contenido. Conclusion: el Family Management Measure se presenta adaptado para el idioma portugues de Brasil ahora denominado de Instrumento de Medida de Manejo Familiar.Objectives to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. Method the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. Results these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. Conclusion the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

A utilização do Family Management Style Framework para avaliação do manejo familiar do transplante hepático na adolescência

Objetivo: Descrever o comportamento de criancas durante a sessao de brinquedo terapeutico instrucional (BTI) no periodo pre-operatorio e verificar o comportamento apresentado por elas no periodo transoperatorio. Metodo: Pesquisa descritiva exploratoria de abordagem quantitativa, desenvolvida em um hospital particular de grande porte da cidade de Sao Paulo, na qual os comportamentos apresentados por 30 criancas entre tres e cinco anos submetidas a cirurgia de pequeno porte foram observados na unidade de internacao durante a sessao de BT e na sala de cirurgia, desde a admissao ate despertarem da anestesia. Resultados: A maioria participou efetivamente da sessao de BTI (21; 70%), entrou espontaneamente na sala operatoria (22; 73,3%) e sem resistir a separacao da mae (24; 80%), colaborando com o procedimento anestesico (16; 53,3%) e despertando da anestesia tranquilamente (26; 87%).
Conclusao: O uso do BTI propiciou a crianca compreender o procedimento cirurgico, tornando-o menos traumatico.OBJECTIVE To understand the family management experience of liver transplantation during adolescence based on the Family Management Style Framework(FMSF). METHOD This is a case study that used the FMSF as theoretical framework and the hybrid model of thematic analysis as methodological reference. The case presented is from an adolescents family that lives in Salvador, Bahia. The data were collected through interviews with the mother and the patient charts analysis. RESULTS The results shows that the family defines the transplantation as threatening and there are divergence between mother and daughter related to the teens capabilities perception. Facing those discrepancies, the family assumes a protective posture by believing that the teen cannot take care of herself alone. The perceived consequences reflect how much the uncertainty permeates the family environment. CONCLUSION It is concluded that the use of a model to evaluate the management can help professionals to direct and plan specific interventions.

La utilización del family management style framework para evaluar el manejo familiar del trasplante hepático en la adolescencia

Objetivo: Descrever o comportamento de criancas durante a sessao de brinquedo terapeutico instrucional (BTI) no periodo pre-operatorio e verificar o comportamento apresentado por elas no periodo transoperatorio. Metodo: Pesquisa descritiva exploratoria de abordagem quantitativa, desenvolvida em um hospital particular de grande porte da cidade de Sao Paulo, na qual os comportamentos apresentados por 30 criancas entre tres e cinco anos submetidas a cirurgia de pequeno porte foram observados na unidade de internacao durante a sessao de BT e na sala de cirurgia, desde a admissao ate despertarem da anestesia. Resultados: A maioria participou efetivamente da sessao de BTI (21; 70%), entrou espontaneamente na sala operatoria (22; 73,3%) e sem resistir a separacao da mae (24; 80%), colaborando com o procedimento anestesico (16; 53,3%) e despertando da anestesia tranquilamente (26; 87%).
Conclusao: O uso do BTI propiciou a crianca compreender o procedimento cirurgico, tornando-o menos traumatico.OBJECTIVE To understand the family management experience of liver transplantation during adolescence based on the Family Management Style Framework(FMSF). METHOD This is a case study that used the FMSF as theoretical framework and the hybrid model of thematic analysis as methodological reference. The case presented is from an adolescents family that lives in Salvador, Bahia. The data were collected through interviews with the mother and the patient charts analysis. RESULTS The results shows that the family defines the transplantation as threatening and there are divergence between mother and daughter related to the teens capabilities perception. Facing those discrepancies, the family assumes a protective posture by believing that the teen cannot take care of herself alone. The perceived consequences reflect how much the uncertainty permeates the family environment. CONCLUSION It is concluded that the use of a model to evaluate the management can help professionals to direct and plan specific interventions.