Natália de Andrade de Moraes

Internação domiciliar do paciente terminal: o olhar do cuidador familiar

This study was aimed at getting to know the relationships built among patients, family caregivers and the health care team, during home care,from the perspective of the family caregiver It is a qualitative study with 11 family caregivers of terminal patients, registered on a home care service of a university hospital in the South of Brazil. Data collection was carried out through narrative interviews that were recorded transcribed and analyzed through content analysis. Three categories were built from data analysis: relationships among the family caregiver, the patient and the health care team; awareness of the patients terminal condition. the caregivers perspective; and situation in which patients are unaware of their terminal condition. They approach how the home care relationships are established among the caregivers, such as health care professionals and family caregivers, and the people who are taken care of such as the patients, highlighting the importance of communication in such care related context.O presente estudo buscou conhecer as relacoes entre paciente, cuidadores familiares e equipe de saude, na internacao domiciliar, sob o olhar do cuidador familiar. Trata-se de um estudo qualitativo com 11 cuidadores familiares de doentes terminais, cadastrados em um servico de internacao domiciliar de um hospital universitario do sul do Brasil. A coleta de dados se realizou atraves de entrevistas narrativas, que foram gravadas e transcritas para serem tratadas por meio de analise de conteudo. A partir da analise dos dados, foram construidas tres categorias: Relacoes entre cuidador familiar, paciente e equipe de saude; Consciencia da terminalidade do paciente: o olhar do cuidador; e Situacao de terminalidade ocultada ao paciente. Elas abordam como ocorrem as relacoes na internacao domiciliar entre os seres que cuidam, como os profissionais de saude e cuidadores familiares, e os seres cuidados, como os pacientes, explicitando o quanto a comunicacao e importante nesse contexto de cuidado.

Terminal patient home care: the family caregiver's perspective

This study was aimed at getting to know the relationships built among patients, family caregivers and the health care team, during home care,from the perspective of the family caregiver It is a qualitative study with 11 family caregivers of terminal patients, registered on a home care service of a university hospital in the South of Brazil. Data collection was carried out through narrative interviews that were recorded transcribed and analyzed through content analysis. Three categories were built from data analysis: relationships among the family caregiver, the patient and the health care team; awareness of the patients terminal condition. the caregivers perspective; and situation in which patients are unaware of their terminal condition. They approach how the home care relationships are established among the caregivers, such as health care professionals and family caregivers, and the people who are taken care of such as the patients, highlighting the importance of communication in such care related context.O presente estudo buscou conhecer as relacoes entre paciente, cuidadores familiares e equipe de saude, na internacao domiciliar, sob o olhar do cuidador familiar. Trata-se de um estudo qualitativo com 11 cuidadores familiares de doentes terminais, cadastrados em um servico de internacao domiciliar de um hospital universitario do sul do Brasil. A coleta de dados se realizou atraves de entrevistas narrativas, que foram gravadas e transcritas para serem tratadas por meio de analise de conteudo. A partir da analise dos dados, foram construidas tres categorias: Relacoes entre cuidador familiar, paciente e equipe de saude; Consciencia da terminalidade do paciente: o olhar do cuidador; e Situacao de terminalidade ocultada ao paciente. Elas abordam como ocorrem as relacoes na internacao domiciliar entre os seres que cuidam, como os profissionais de saude e cuidadores familiares, e os seres cuidados, como os pacientes, explicitando o quanto a comunicacao e importante nesse contexto de cuidado.

Internación domiciliaria del paciente terminal: la visión del cuidador familiar

This study was aimed at getting to know the relationships built among patients, family caregivers and the health care team, during home care,from the perspective of the family caregiver It is a qualitative study with 11 family caregivers of terminal patients, registered on a home care service of a university hospital in the South of Brazil. Data collection was carried out through narrative interviews that were recorded transcribed and analyzed through content analysis. Three categories were built from data analysis: relationships among the family caregiver, the patient and the health care team; awareness of the patients terminal condition. the caregivers perspective; and situation in which patients are unaware of their terminal condition. They approach how the home care relationships are established among the caregivers, such as health care professionals and family caregivers, and the people who are taken care of such as the patients, highlighting the importance of communication in such care related context.O presente estudo buscou conhecer as relacoes entre paciente, cuidadores familiares e equipe de saude, na internacao domiciliar, sob o olhar do cuidador familiar. Trata-se de um estudo qualitativo com 11 cuidadores familiares de doentes terminais, cadastrados em um servico de internacao domiciliar de um hospital universitario do sul do Brasil. A coleta de dados se realizou atraves de entrevistas narrativas, que foram gravadas e transcritas para serem tratadas por meio de analise de conteudo. A partir da analise dos dados, foram construidas tres categorias: Relacoes entre cuidador familiar, paciente e equipe de saude; Consciencia da terminalidade do paciente: o olhar do cuidador; e Situacao de terminalidade ocultada ao paciente. Elas abordam como ocorrem as relacoes na internacao domiciliar entre os seres que cuidam, como os profissionais de saude e cuidadores familiares, e os seres cuidados, como os pacientes, explicitando o quanto a comunicacao e importante nesse contexto de cuidado.