Sheila de Souza Vieira

Discovery of hearing impairment by the family: seeing an idealized future collapse

Objective: To portray the family experience when the discovery of hearing impairment in their child. Methods: Qualitative research with Symbolic Interactionism and Grounded Theory as theoretical and methodological frameworks. Data collection instrument: semi-structured interview. The study included nine families (32 participants). Results: The theme, “Seeing an idealized future collapse”, shows that for the family, discovered the possibility of having a child with hearing loss is a moment that involves many negative feelings. Conclusion: Discover the hearing loss has a meaning of the expected loss of the perfect child, frustrated expectations and uncertain future. The family has been inadequately approached and the diagnosis has been made late, which requires immediate changes to the practices of professionals.

Panorama da educação à distância em enfermagem no Brasil

The development of distance education is associated with the popularization and democratization of the accessibility to information and communication technologies. Nursing has been using this modality of education in both undergraduate and graduate courses, which has provided knowledge about other technologies, an easier accessibility, flexibility of time and space, and reduced costs. The objective of this study is map the national higher education distance nursing courses. This exploratory, descriptive study was developed by visiting governmental, non-governmental and institutional websites. Two undergraduate and nine graduate courses in nursing were found, which is considered to be a low number, considering that distance education is an appropriate pedagogical tool that permits to prepare a large number of nurses who are geographically dispersed and who do not have access to the conventional educational processes.The development of distance education is associated with the popularization and democratization of the accessibility to information and communication technologies. Nursing has been using this modality of education in both undergraduate and graduate courses, which has provided knowledge about other technologies, an easier accessibility, flexibility of time and space, and reduced costs. The objective of this study is map the national higher education distance nursing courses. This exploratory, descriptive study was developed by visiting governmental, non-governmental and institutional websites. Two undergraduate and nine graduate courses in nursing were found, which is considered to be a low number, considering that distance education is an appropriate pedagogical tool that permits to prepare a large number of nurses who are geographically dispersed and who do not have access to the conventional educational processes.

Panorama of nursing distance education in Brazil

The development of distance education is associated with the popularization and democratization of the accessibility to information and communication technologies. Nursing has been using this modality of education in both undergraduate and graduate courses, which has provided knowledge about other technologies, an easier accessibility, flexibility of time and space, and reduced costs. The objective of this study is map the national higher education distance nursing courses. This exploratory, descriptive study was developed by visiting governmental, non-governmental and institutional websites. Two undergraduate and nine graduate courses in nursing were found, which is considered to be a low number, considering that distance education is an appropriate pedagogical tool that permits to prepare a large number of nurses who are geographically dispersed and who do not have access to the conventional educational processes.The development of distance education is associated with the popularization and democratization of the accessibility to information and communication technologies. Nursing has been using this modality of education in both undergraduate and graduate courses, which has provided knowledge about other technologies, an easier accessibility, flexibility of time and space, and reduced costs. The objective of this study is map the national higher education distance nursing courses. This exploratory, descriptive study was developed by visiting governmental, non-governmental and institutional websites. Two undergraduate and nine graduate courses in nursing were found, which is considered to be a low number, considering that distance education is an appropriate pedagogical tool that permits to prepare a large number of nurses who are geographically dispersed and who do not have access to the conventional educational processes.

Descoberta da deficiência auditiva pela família: vendo o futuro idealizado desmoronar*

Objective: To portray the family experience when the discovery of hearing impairment in their child. Methods: Qualitative research with Symbolic Interactionism and Grounded Theory as theoretical and methodological frameworks. Data collection instrument: semi-structured interview. The study included nine families (32 participants). Results: The theme, “Seeing an idealized future collapse”, shows that for the family, discovered the possibility of having a child with hearing loss is a moment that involves many negative feelings. Conclusion: Discover the hearing loss has a meaning of the expected loss of the perfect child, frustrated expectations and uncertain future. The family has been inadequately approached and the diagnosis has been made late, which requires immediate changes to the practices of professionals.

Cochlear Implant: the complexity involved in the decision making process by the family

Objective to understand the meanings the family attributes to the phases of the decision-making process on a cochlear implant for their child. Method qualitative research, using Symbolic Interactionism and Grounded Theory as the theoretical and methodological frameworks, respectively. Data collection instrument: semistructured interview. Nine families participated in the study (32 participants). Results knowledge deficit, difficulties to contextualize benefits and risks and fear are some factors that make this process difficult. Experiences deriving from interactions with health professionals, other cochlear implant users and their relatives strengthen decision making in favor of the implant. Conclusion deciding on whether or not to have the implant involves a complex process, in which the family needs to weigh gains and losses, experience feelings of accountability and guilt, besides overcoming the risk aversion. Hence, this demands cautious preparation and knowledge from the professionals involved in this intervention.OBJETIVO: compreender os significados atribuidos pela familia as etapas do processo de tomada decisao para o implante coclear no filho. METODO: pesquisa qualitativa, tendo o Interacionismo Simbolico e a Teoria Fundamentada nos Dados como referenciais teorico e metodologico, respectivamente. Instrumento de coleta de dados: entrevista semiestruturada. Participaram do estudo nove familias (32 participantes). RESULTADOS: deficit de conhecimento, dificuldades em contextualizar beneficios e riscos, e medo sao alguns dificultadores desse processo. Experiencias advindas das interacoes estabelecidas com profissionais de saude, outros usuarios de implante coclear e seus familiares fortalecem a tomada de decisao para o implante. CONCLUSAO: decidir ou nao pelo implante envolve um processo complexo, em que a familia precisa pesar ganhos e perdas, vivenciar sentimentos de responsabilizacao e culpabilidade, alem de superar a aversao aos riscos. Assim, demanda cauteloso preparo e conhecimento dos profissionais envolvidos nessa intervencao.

Identificando necessidades de crianças com deficiência auditiva: uma contribuição para profissionais da saúde e educação

Resumen Hearing loss has been the subject of concern among health professionals, due to its chronic condition with severe consequences for children, families and society. This study aimed to identify school-age children enrolled in public elementary schools in the city, identifying the type of health assistance that they receive and identify the difficulties that the family experiences as a result of hearing impairment. It was used symbolic interactionism (SI) and Narrative as theoretical and methodological respectively. S ix fami l ies par t ic ipated in the sur vey. The inter views were taped and transcribed. The family misses the support and infrastructure of the municipality for the diagnosis and rehabilitation, in addition to lack of resources and investment in the school, being obliged to mobilize to confront this situation. This research provides background for thinking about nursing actions and public policies that may qualify the health care of this population. 1Enfermeira. Graduada pelo cur so de Enfermagem da Universidade Federal de São Car los (UFSCar) – São Car los-SP. Brasil. E-mail: thais_scarpitta@hotmail.com; 2Enfermeira. Mestre em Enfermagem. Programa de Pós-Graduação em Enfermagem da Universidade Federal de São Carlos. Membro do Grupo Saúde e Família. São Carlos – SP. E-mail: sheilasvieira@yahoo.com.br; 3Enfermeira. Doutora. Professor Associado do Depar tamento de Enfermagem da Universidade Federal de São Carlos. Líder e pesquisadora do Grupo Saúde e Família/CNPq. São Carlos – SP. Brasil. E-mail: gdupas@ufscar.br PESQUISA RESEARCH INVESTIGACIÓN La pérdida de audición ha sido objeto de preocupación entre los profesionales de salud, puesto que es una enfermedad crónica con graves consecuencias para los niños, las familias y la sociedad. Este estudio tuvo como objetivo identificar quienes son los niños en edad escolar matriculados en escuelas públicas de la ciudad, conocer el tipo de atención médica que reciben e identificar junto a las familias las dificultades que ellos viven a partir de la discapacidad auditiva de sus niños. Se utilizó la Interacción Simbólica (IS) y la Narrativa como referenciales teórico y metodológico respectivamente. Seis familias participaron de la encuesta. Las entrevistas fueron grabadas y transcritas. La familia siente la ausencia de apoyo e infraestructura del municipio para el diagnóstico y rehabilitación, además de la escasez de recursos e inversiones en la escuela, lo que les implica movilidad para enfrentar a esta situación. Esta investigación proporciona la base para pensar en acc iones de en fer mer ía y políticas públicas que puedan implementarse para la atención de la salud de esta población. Palabras clave: Pérdida auditiva. Niño. Enfermería. Enfermedad crónica Thais Pereira Scarpitta 1 Identifying needs of children with hearing loss: a contribution to health and education professionals Identificación de las necesidades de los niños con discapacidad auditiva: una contribución a los profesionales de la salud y la educación Esc Anna Nery (impr.)2011 out-dez; 15 (4):791-801La perdida de audicion ha sido objeto de preocupacion entre los profesionales de salud, puesto que es una enfermedad cronica con graves consecuencias para los ninos, las familias y la sociedad. Este estudio tuvo como objetivo identificar quienes son los ninos en edad escolar matriculados en escuelas publicas de la ciudad, conocer el tipo de atencion medica que reciben e identificar junto a las familias las dificultades que ellos viven a partir de la discapacidad auditiva de sus ninos. Se utilizo la Interaccion Simbolica (IS) y la Narrativa como referenciales teorico y metodologico respectivamente. Seis familias participaron de la encuesta. Las entrevistas fueron grabadas y transcritas. La familia siente la ausencia de apoyo e infraestructura del municipio para el diagnostico y rehabilitacion, ademas de la escasez de recursos e inversiones en la escuela, lo que les implica movilidad para enfrentar a esta situacion. Esta investigacion proporciona la base para pensar en acciones de enfermeria y politicas publicas que puedan implementarse para la atencion de la salud de esta poblacion.

Implante Coclear: la complejidad comprendida en el proceso de la toma de decisiones por la familia

Objective to understand the meanings the family attributes to the phases of the decision-making process on a cochlear implant for their child. Method qualitative research, using Symbolic Interactionism and Grounded Theory as the theoretical and methodological frameworks, respectively. Data collection instrument: semistructured interview. Nine families participated in the study (32 participants). Results knowledge deficit, difficulties to contextualize benefits and risks and fear are some factors that make this process difficult. Experiences deriving from interactions with health professionals, other cochlear implant users and their relatives strengthen decision making in favor of the implant. Conclusion deciding on whether or not to have the implant involves a complex process, in which the family needs to weigh gains and losses, experience feelings of accountability and guilt, besides overcoming the risk aversion. Hence, this demands cautious preparation and knowledge from the professionals involved in this intervention.OBJETIVO: compreender os significados atribuidos pela familia as etapas do processo de tomada decisao para o implante coclear no filho. METODO: pesquisa qualitativa, tendo o Interacionismo Simbolico e a Teoria Fundamentada nos Dados como referenciais teorico e metodologico, respectivamente. Instrumento de coleta de dados: entrevista semiestruturada. Participaram do estudo nove familias (32 participantes). RESULTADOS: deficit de conhecimento, dificuldades em contextualizar beneficios e riscos, e medo sao alguns dificultadores desse processo. Experiencias advindas das interacoes estabelecidas com profissionais de saude, outros usuarios de implante coclear e seus familiares fortalecem a tomada de decisao para o implante. CONCLUSAO: decidir ou nao pelo implante envolve um processo complexo, em que a familia precisa pesar ganhos e perdas, vivenciar sentimentos de responsabilizacao e culpabilidade, alem de superar a aversao aos riscos. Assim, demanda cauteloso preparo e conhecimento dos profissionais envolvidos nessa intervencao.

Implante coclear: a complexidade envolvida no processo de tomada de decisão pela família

Objective to understand the meanings the family attributes to the phases of the decision-making process on a cochlear implant for their child. Method qualitative research, using Symbolic Interactionism and Grounded Theory as the theoretical and methodological frameworks, respectively. Data collection instrument: semistructured interview. Nine families participated in the study (32 participants). Results knowledge deficit, difficulties to contextualize benefits and risks and fear are some factors that make this process difficult. Experiences deriving from interactions with health professionals, other cochlear implant users and their relatives strengthen decision making in favor of the implant. Conclusion deciding on whether or not to have the implant involves a complex process, in which the family needs to weigh gains and losses, experience feelings of accountability and guilt, besides overcoming the risk aversion. Hence, this demands cautious preparation and knowledge from the professionals involved in this intervention.OBJETIVO: compreender os significados atribuidos pela familia as etapas do processo de tomada decisao para o implante coclear no filho. METODO: pesquisa qualitativa, tendo o Interacionismo Simbolico e a Teoria Fundamentada nos Dados como referenciais teorico e metodologico, respectivamente. Instrumento de coleta de dados: entrevista semiestruturada. Participaram do estudo nove familias (32 participantes). RESULTADOS: deficit de conhecimento, dificuldades em contextualizar beneficios e riscos, e medo sao alguns dificultadores desse processo. Experiencias advindas das interacoes estabelecidas com profissionais de saude, outros usuarios de implante coclear e seus familiares fortalecem a tomada de decisao para o implante. CONCLUSAO: decidir ou nao pelo implante envolve um processo complexo, em que a familia precisa pesar ganhos e perdas, vivenciar sentimentos de responsabilizacao e culpabilidade, alem de superar a aversao aos riscos. Assim, demanda cauteloso preparo e conhecimento dos profissionais envolvidos nessa intervencao.

Descubrimiento de la discapacidad auditiva por la família: contemplando el colapso del futuro idealizado

Objective: To portray the family experience when the discovery of hearing impairment in their child. Methods: Qualitative research with Symbolic Interactionism and Grounded Theory as theoretical and methodological frameworks. Data collection instrument: semi-structured interview. The study included nine families (32 participants). Results: The theme, “Seeing an idealized future collapse”, shows that for the family, discovered the possibility of having a child with hearing loss is a moment that involves many negative feelings. Conclusion: Discover the hearing loss has a meaning of the expected loss of the perfect child, frustrated expectations and uncertain future. The family has been inadequately approached and the diagnosis has been made late, which requires immediate changes to the practices of professionals.

Panorama de la educación a distancia en enfermería en Brasil

The development of distance education is associated with the popularization and democratization of the accessibility to information and communication technologies. Nursing has been using this modality of education in both undergraduate and graduate courses, which has provided knowledge about other technologies, an easier accessibility, flexibility of time and space, and reduced costs. The objective of this study is map the national higher education distance nursing courses. This exploratory, descriptive study was developed by visiting governmental, non-governmental and institutional websites. Two undergraduate and nine graduate courses in nursing were found, which is considered to be a low number, considering that distance education is an appropriate pedagogical tool that permits to prepare a large number of nurses who are geographically dispersed and who do not have access to the conventional educational processes.The development of distance education is associated with the popularization and democratization of the accessibility to information and communication technologies. Nursing has been using this modality of education in both undergraduate and graduate courses, which has provided knowledge about other technologies, an easier accessibility, flexibility of time and space, and reduced costs. The objective of this study is map the national higher education distance nursing courses. This exploratory, descriptive study was developed by visiting governmental, non-governmental and institutional websites. Two undergraduate and nine graduate courses in nursing were found, which is considered to be a low number, considering that distance education is an appropriate pedagogical tool that permits to prepare a large number of nurses who are geographically dispersed and who do not have access to the conventional educational processes.