Daisy Zanchi de Abreu Botene

Implicações do uso da terapia antirretroviral no modo de viver de crianças com Aids

Trata-se de estudo exploratorio descritivo, com abordagem qualitativa, que objetivou conhecer o viver de criancas portadoras de aids e as implicacoes do uso da terapia antirretroviral. Participaram cinco criancas com idades entre 10 e 12 anos. A coleta de informacao iniciou-se somente apos aprovacao em Comite de Etica em Pesquisa e foi realizada por meio da tecnica de Grupo Focal. Para analise das informacoes, utilizou-se a analise tematica. Da analise surgiram tres categorias e suas subcategorias. Neste artigo sera abordada a categoria Envolvimento da crianca com os antirretrovirais. Esta categoria revela como a crianca percebe e se relaciona com a terapia antirretroviral. Considera-se que estes achados possam subsidiar profissionais da saude e da educacao na atencao e cuidado as criancas que vivem com aids.This descriptive, exploratory study was performed using a qualitative approach with the purpose of learning about the life style of children with AIDS and the implications that following a antiretroviral therapy have on them. Participants were five children with ages between 10 and 12 years. Data collection took place after the study was approved by the Review Board and was performed using the Focal Group technique. Data analysis was performed using thematic analysis, from which three categories and respective subcategories emerged. This article addresses one of the categories: The childs involvement with the antiretroviral drugs. This category reveals how the children perceive and relate with the antiretroviral therapy. The study findings may serve as supporting information for health professionals, education programs about health care to children living with AIDS.

Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

OBJECTIVE To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the childs care.

Cuidados paliativos em oncologia pediátrica: percepções, saberes e práticas na perspectiva da equipe multiprofissional

OBJECTIVE To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the childs care.

The development of the adolescent mother and her baby ’s attachment

The study concerns about the development of the attachment between the adolescent mother and her baby. Its objectives are to know the adolescent’s experience as a mother; to recognize the manifestations of attachment between mother/baby and to know the factors that facilitate and/or interfere the development of the attachment. It is a longitudinal study with a qualitative approach, realized with six adolescent mothers, between thirteen and nineteen years old, and their babies, linked to the Family Health Program (FHP) from Vila Pinto, a popular class comunity in Porto Alegre/RS. The collection of the information was realized through semi-structered interviews and participatory observations. For the analysis of the information, an analysis of the content was used, from where the following cathegories emerged: satisfaction with the maternity; bonding-attachment; familiar support and interrupted project of life. The results indicate that the familiar and the partener’s support are the bonding facilitating factors, since youngesters have this support, show an affectionate relationship with their babies, but we can not to say that others adolescents whose don’t have this support, don’t development of the attachment with your sons.

Cuidados paliativos en oncología pediátrica: percepciones, saberes y prácticas bajo la perspectiva de un equipo multidisciplinario

OBJECTIVE To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the childs care.

Children living with AIDS and their experiences with antiretroviral therapy

Estudo com o objetivo de conhecer como a crianca que vive com AIDS descreve sua experiencia com o uso de antirretrovirais (ARV). Trata-se de um estudo qualitativo, exploratorio, descritivo, realizado no ambulatorio do Servico de Assistencia Especializada em Doenca Sexualmente Transmissivel, em Porto Alegre, no periodo entre maio e julho de 2009, com criancas em uso de ARV. A coleta das informacoes foi realizada utilizando-se a tecnica de grupo focal. A analise, feita por meio da analise de conteudo, evidenciou as seguintes categorias: modo de vida da crianca com AIDS; manuseio da medicacao; expectativas e sentimentos. O estudo trouxe contribuicoes importantes que ainda devem ser aprofundadas em relacao a essa tematica no universo infantil. A adesao aos ARV constitui-se um desafio para os profissionais da saude e para a familia. O conhecimento das vivencias e estrategias das criancas pode oportunizar novas formas de ver, tratar e cuidar dessa parcela da populacao.The purpose of this study was to find out how children who live with AIDS describe their experiences with antitetrovirals (ARV). This qualitative exploratory-descriptive study was conducted in the outpatient clinic of the STD Specialized Care Service, in the city of Porto Alegre, between May and July 2009, with children using ARV. Information was collected adopting the focus group method. The analysis was carried out by means of content analysis, which has evidenced the following categories: way of life of children with AIDS; Medication handling; expectations and feelings. The study made important contributions that must be further analyzed in relation to this theme in the childs universe. The adherence to ARV constitutes a challenge for both health professionals and the family. Knowing more about childrens experiences and strategies can provide new ways of seeing, treating, and caring for this segment of the population.

Niños que viven con SIDA y sus experiencias con el uso de antirretrovirales

Estudo com o objetivo de conhecer como a crianca que vive com AIDS descreve sua experiencia com o uso de antirretrovirais (ARV). Trata-se de um estudo qualitativo, exploratorio, descritivo, realizado no ambulatorio do Servico de Assistencia Especializada em Doenca Sexualmente Transmissivel, em Porto Alegre, no periodo entre maio e julho de 2009, com criancas em uso de ARV. A coleta das informacoes foi realizada utilizando-se a tecnica de grupo focal. A analise, feita por meio da analise de conteudo, evidenciou as seguintes categorias: modo de vida da crianca com AIDS; manuseio da medicacao; expectativas e sentimentos. O estudo trouxe contribuicoes importantes que ainda devem ser aprofundadas em relacao a essa tematica no universo infantil. A adesao aos ARV constitui-se um desafio para os profissionais da saude e para a familia. O conhecimento das vivencias e estrategias das criancas pode oportunizar novas formas de ver, tratar e cuidar dessa parcela da populacao.The purpose of this study was to find out how children who live with AIDS describe their experiences with antitetrovirals (ARV). This qualitative exploratory-descriptive study was conducted in the outpatient clinic of the STD Specialized Care Service, in the city of Porto Alegre, between May and July 2009, with children using ARV. Information was collected adopting the focus group method. The analysis was carried out by means of content analysis, which has evidenced the following categories: way of life of children with AIDS; Medication handling; expectations and feelings. The study made important contributions that must be further analyzed in relation to this theme in the childs universe. The adherence to ARV constitutes a challenge for both health professionals and the family. Knowing more about childrens experiences and strategies can provide new ways of seeing, treating, and caring for this segment of the population.

Crianças que vivem com AIDS e suas experiências com o uso de antirretrovirais

Estudo com o objetivo de conhecer como a crianca que vive com AIDS descreve sua experiencia com o uso de antirretrovirais (ARV). Trata-se de um estudo qualitativo, exploratorio, descritivo, realizado no ambulatorio do Servico de Assistencia Especializada em Doenca Sexualmente Transmissivel, em Porto Alegre, no periodo entre maio e julho de 2009, com criancas em uso de ARV. A coleta das informacoes foi realizada utilizando-se a tecnica de grupo focal. A analise, feita por meio da analise de conteudo, evidenciou as seguintes categorias: modo de vida da crianca com AIDS; manuseio da medicacao; expectativas e sentimentos. O estudo trouxe contribuicoes importantes que ainda devem ser aprofundadas em relacao a essa tematica no universo infantil. A adesao aos ARV constitui-se um desafio para os profissionais da saude e para a familia. O conhecimento das vivencias e estrategias das criancas pode oportunizar novas formas de ver, tratar e cuidar dessa parcela da populacao.The purpose of this study was to find out how children who live with AIDS describe their experiences with antitetrovirals (ARV). This qualitative exploratory-descriptive study was conducted in the outpatient clinic of the STD Specialized Care Service, in the city of Porto Alegre, between May and July 2009, with children using ARV. Information was collected adopting the focus group method. The analysis was carried out by means of content analysis, which has evidenced the following categories: way of life of children with AIDS; Medication handling; expectations and feelings. The study made important contributions that must be further analyzed in relation to this theme in the childs universe. The adherence to ARV constitutes a challenge for both health professionals and the family. Knowing more about childrens experiences and strategies can provide new ways of seeing, treating, and caring for this segment of the population.

Implications of using antiretroviral therapy on the life style of children with Aids

Trata-se de estudo exploratorio descritivo, com abordagem qualitativa, que objetivou conhecer o viver de criancas portadoras de aids e as implicacoes do uso da terapia antirretroviral. Participaram cinco criancas com idades entre 10 e 12 anos. A coleta de informacao iniciou-se somente apos aprovacao em Comite de Etica em Pesquisa e foi realizada por meio da tecnica de Grupo Focal. Para analise das informacoes, utilizou-se a analise tematica. Da analise surgiram tres categorias e suas subcategorias. Neste artigo sera abordada a categoria Envolvimento da crianca com os antirretrovirais. Esta categoria revela como a crianca percebe e se relaciona com a terapia antirretroviral. Considera-se que estes achados possam subsidiar profissionais da saude e da educacao na atencao e cuidado as criancas que vivem com aids.This descriptive, exploratory study was performed using a qualitative approach with the purpose of learning about the life style of children with AIDS and the implications that following a antiretroviral therapy have on them. Participants were five children with ages between 10 and 12 years. Data collection took place after the study was approved by the Review Board and was performed using the Focal Group technique. Data analysis was performed using thematic analysis, from which three categories and respective subcategories emerged. This article addresses one of the categories: The childs involvement with the antiretroviral drugs. This category reveals how the children perceive and relate with the antiretroviral therapy. The study findings may serve as supporting information for health professionals, education programs about health care to children living with AIDS.

Implicancias del uso de la terapia antirretroviral en el modo de vida de niños con Aids

Trata-se de estudo exploratorio descritivo, com abordagem qualitativa, que objetivou conhecer o viver de criancas portadoras de aids e as implicacoes do uso da terapia antirretroviral. Participaram cinco criancas com idades entre 10 e 12 anos. A coleta de informacao iniciou-se somente apos aprovacao em Comite de Etica em Pesquisa e foi realizada por meio da tecnica de Grupo Focal. Para analise das informacoes, utilizou-se a analise tematica. Da analise surgiram tres categorias e suas subcategorias. Neste artigo sera abordada a categoria Envolvimento da crianca com os antirretrovirais. Esta categoria revela como a crianca percebe e se relaciona com a terapia antirretroviral. Considera-se que estes achados possam subsidiar profissionais da saude e da educacao na atencao e cuidado as criancas que vivem com aids.This descriptive, exploratory study was performed using a qualitative approach with the purpose of learning about the life style of children with AIDS and the implications that following a antiretroviral therapy have on them. Participants were five children with ages between 10 and 12 years. Data collection took place after the study was approved by the Review Board and was performed using the Focal Group technique. Data analysis was performed using thematic analysis, from which three categories and respective subcategories emerged. This article addresses one of the categories: The childs involvement with the antiretroviral drugs. This category reveals how the children perceive and relate with the antiretroviral therapy. The study findings may serve as supporting information for health professionals, education programs about health care to children living with AIDS.