Helena Becker Issi

Criança com HIV/AIDS: percepção do tratamento antirretroviral

This article presents a cutting from the multicentric study carried out in the municipalities of Porto Alegre and Santa Maria/ RS with the objective of unveiling the perception and the life experience of the child regarding the antiretroviral treatment. With qualitative approach, the study was carried out with seven children of five to ten years of age, in the period from 2006 to 2010, after approval by Committee National for Ethics in research and the Committees of Ethics in research. Based on the thematic analysis was obtained the results: the day-to-day life of the child with medicines; the family care upon the adhesion to the antiretroviral treatment; the professional care:perception of children with infection. Observation showed that the children face adversities, know and appreciate the treatment in spite of the paradoxical movement of rejection/acceptance expressed by the fight against the syndrome.Neste artigo, faz-se um recorte do estudo multicentrico, realizado nos municipios de Porto Alegre e Santa Maria/ RS, com o objetivo de desvelar a percepcao e a vivencia da crianca quanto ao tratamento antirretroviral. Com abordagem qualitativa, o estudo foi realizado com sete criancas, com idade entre cinco e 10 anos de idade, no periodo de 2006 a 2010, apos aprovacao pela Comissao Nacional de Etica em Pesquisa e pelos Comites de Etica em pesquisa. A partir da analise tematica, foram obtidos os resultados: Cotidiano medicamentoso da crianca; Cuidado familial na adesao ao tratamento antirretroviral; Cuidado Profissional: percepcao da crianca com a infeccao. Observou-se que as criancas enfrentam adversidades, conhecem e valorizam o tratamento apesar do movimento paradoxal de rejeicao/aceitacao manifestados pela luta contra a sindrome.

O silêncio no cotidiano do adolescente com HIV/AIDS

This study is characterized as a qualitative research with the objective of unveiling the perception and experience regarding the antiretroviral treatment of the adolescent with acquired immunodeficiency syndrome. The research was carried out within reference health care centers in two municipalities from the southern region of Brazil. The data production was developed through the creativity and sensitiveness dynamics of talking map type by a group of five participants. One applied the technique of content thematic analysis. The artistic productions and testimonies evidenced their daily experience with use of medications and the silence on the diagnosis of the disease and its treatment that implies the health care. The conclusion drawn is that the involvement of health professionals is needed since it opens spaces for the family besides promoting the dialogue of its members with the adolescent aiming at the adhesion to the treatment.This study is characterized as a qualitative research with the objective of unveiling the perception and experience regarding the antiretroviral treatment of the adolescent with acquired immunodeficiency syndrome. The research was carried out within reference health care centers in two municipalities from the southern region of Brazil. The data production was developed through the creativity and sensitiveness dynamics of talking map type by a group of five participants. One applied the technique of content thematic analysis. The artistic productions and testimonies evidenced their daily experience with use of medications and the silence on the diagnosis of the disease and its treatment that implies the health care. The conclusion drawn is that the involvement of health professionals is needed since it opens spaces for the family besides promoting the dialogue of its members with the adolescent aiming at the adhesion to the treatment.

Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

OBJECTIVE To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the childs care.

Cuidados paliativos em oncologia pediátrica: percepções, saberes e práticas na perspectiva da equipe multiprofissional

OBJECTIVE To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the childs care.

CUIDADO FAMILIAL NO MUNDO DA CRIANÇA E ADOLESCENTE QUE VIVEM COM HIV/AIDS

ABSTRACT Objective: This study seeked to unveil the caregiver family member´s perception regarding the daily medication in the perspective of the child and adolescent with HIV/AIDS. Method: This qualitative research was conducted using the creative and sensitive method and was developed in the municipalities of Porto Alegre and Santa Maria, RS, with the participation of 12 caregiver family members between 2006 and 2010 and approved by the Research Ethics Committee of the involved institutions. Results: From the thematic analysis, the following categories emerged: implications of the day-to-day medication for the families and family care while living with the disease. Upon the daily life of the child or adolescent with HIV/AIDS, the family perceives the difficulties of the antiretroviral treatment, the transition from childhood into adolescence, the multiple faces of living with HIV/AIDS. Conclusion: The family care occurs within a new family configuration to provide comfort and protection to the child or adolescent with HIV/AIDS.

Aspectos da atividade assistencial da enfermeira na unidade de internaçäo pediátrica

This work is a general approach to the relief activities of the nurse at The Pediatric Intervention Unit. Its main goal is to propose to those nurses performing in hospital pediatric nursing a dialogue to the purpose of understanding how these activities are conducted in our country exchanging viewpoints about their previous experiences. As a reference, activities developed at the UIP-HCPA-RS are presented, eeping in mind the objectives of the Pediatric Unit, the rooming-in system and the multidisciplinar team. The conclusion reached is that trough such activities the nurse will be in a position to offer the admitted pediatric patient, as well as to his family, unceasing and whole assistance. Efforts, on the nurses side, are recommended to establish specific objectives to the Pediatric Units, well defined criteria to nursing assistance and, above all, creative and intelligent operacionalization of time spent at their functions.

Cuidados paliativos en oncología pediátrica: percepciones, saberes y prácticas bajo la perspectiva de un equipo multidisciplinario

OBJECTIVE To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the childs care.

CUIDADO FAMILIAR EN EL MUNDO DEL NIÑO Y DEL ADOLESCENTE QUE VIVEN CON VIH/SIDA

ABSTRACT Objective: This study seeked to unveil the caregiver family member´s perception regarding the daily medication in the perspective of the child and adolescent with HIV/AIDS. Method: This qualitative research was conducted using the creative and sensitive method and was developed in the municipalities of Porto Alegre and Santa Maria, RS, with the participation of 12 caregiver family members between 2006 and 2010 and approved by the Research Ethics Committee of the involved institutions. Results: From the thematic analysis, the following categories emerged: implications of the day-to-day medication for the families and family care while living with the disease. Upon the daily life of the child or adolescent with HIV/AIDS, the family perceives the difficulties of the antiretroviral treatment, the transition from childhood into adolescence, the multiple faces of living with HIV/AIDS. Conclusion: The family care occurs within a new family configuration to provide comfort and protection to the child or adolescent with HIV/AIDS.

FAMILY CARE IN THE CHILD AND THE ADOLESCENT WORLD LIVING WITH HIV/AIDS

ABSTRACT Objective: This study seeked to unveil the caregiver family member´s perception regarding the daily medication in the perspective of the child and adolescent with HIV/AIDS. Method: This qualitative research was conducted using the creative and sensitive method and was developed in the municipalities of Porto Alegre and Santa Maria, RS, with the participation of 12 caregiver family members between 2006 and 2010 and approved by the Research Ethics Committee of the involved institutions. Results: From the thematic analysis, the following categories emerged: implications of the day-to-day medication for the families and family care while living with the disease. Upon the daily life of the child or adolescent with HIV/AIDS, the family perceives the difficulties of the antiretroviral treatment, the transition from childhood into adolescence, the multiple faces of living with HIV/AIDS. Conclusion: The family care occurs within a new family configuration to provide comfort and protection to the child or adolescent with HIV/AIDS.

[Silence in the daily life of the adolescent with HIV/AIDS].

This study is characterized as a qualitative research with the objective of unveiling the perception and experience regarding the antiretroviral treatment of the adolescent with acquired immunodeficiency syndrome. The research was carried out within reference health care centers in two municipalities from the southern region of Brazil. The data production was developed through the creativity and sensitiveness dynamics of talking map type by a group of five participants. One applied the technique of content thematic analysis. The artistic productions and testimonies evidenced their daily experience with use of medications and the silence on the diagnosis of the disease and its treatment that implies the health care. The conclusion drawn is that the involvement of health professionals is needed since it opens spaces for the family besides promoting the dialogue of its members with the adolescent aiming at the adhesion to the treatment.This study is characterized as a qualitative research with the objective of unveiling the perception and experience regarding the antiretroviral treatment of the adolescent with acquired immunodeficiency syndrome. The research was carried out within reference health care centers in two municipalities from the southern region of Brazil. The data production was developed through the creativity and sensitiveness dynamics of talking map type by a group of five participants. One applied the technique of content thematic analysis. The artistic productions and testimonies evidenced their daily experience with use of medications and the silence on the diagnosis of the disease and its treatment that implies the health care. The conclusion drawn is that the involvement of health professionals is needed since it opens spaces for the family besides promoting the dialogue of its members with the adolescent aiming at the adhesion to the treatment.