Aline Cristiane Cavicchioli Okido

Criança dependente de tecnologia: a experiência do cuidado materno

The objective of this study is to understand the maternal experience of caring for a technology-dependent child. We used the ethnographic case study approach, as well as the genogram, ecomap, open interview and observation methods as data collection instruments. The data were organized into three meaning units: the search for causes and culprits; hospital discharge and the demand for care; and the support networks. The study allowed for an understanding of the mothers experience of searching for explanations, as well as feelings of distrust, insecurity and dissatisfaction towards the health service provided. In addition, the mothers organization regarding the childs care and in terms of readying the home environment to receive the child, the use of support networks, and particularly the need for attachment with family and neighbors and the formal and informal search to assure the subsistence of her ill child as well as her other children were explored.The objective of this study is to understand the maternal experience of caring for a technology-dependent child. We used the ethnographic case study approach, as well as the genogram, ecomap, open interview and observation methods as data collection instruments. The data were organized into three meaning units: the search for causes and culprits; hospital discharge and the demand for care; and the support networks. The study allowed for an understanding of the mothers experience of searching for explanations, as well as feelings of distrust, insecurity and dissatisfaction towards the health service provided. In addition, the mothers organization regarding the childs care and in terms of readying the home environment to receive the child, the use of support networks, and particularly the need for attachment with family and neighbors and the formal and informal search to assure the subsistence of her ill child as well as her other children were explored.

Technology-dependent children: the maternal care experience

The objective of this study is to understand the maternal experience of caring for a technology-dependent child. We used the ethnographic case study approach, as well as the genogram, ecomap, open interview and observation methods as data collection instruments. The data were organized into three meaning units: the search for causes and culprits; hospital discharge and the demand for care; and the support networks. The study allowed for an understanding of the mothers experience of searching for explanations, as well as feelings of distrust, insecurity and dissatisfaction towards the health service provided. In addition, the mothers organization regarding the childs care and in terms of readying the home environment to receive the child, the use of support networks, and particularly the need for attachment with family and neighbors and the formal and informal search to assure the subsistence of her ill child as well as her other children were explored.The objective of this study is to understand the maternal experience of caring for a technology-dependent child. We used the ethnographic case study approach, as well as the genogram, ecomap, open interview and observation methods as data collection instruments. The data were organized into three meaning units: the search for causes and culprits; hospital discharge and the demand for care; and the support networks. The study allowed for an understanding of the mothers experience of searching for explanations, as well as feelings of distrust, insecurity and dissatisfaction towards the health service provided. In addition, the mothers organization regarding the childs care and in terms of readying the home environment to receive the child, the use of support networks, and particularly the need for attachment with family and neighbors and the formal and informal search to assure the subsistence of her ill child as well as her other children were explored.

Factors associated with involuntary hospital admissions in technology-dependent children

OBJETIVO Identificar os fatores associados a hospitalizacao nao eletiva em criancas dependentes de tecnologia, no municipio de Ribeirao Preto-SP. METODO Estudo transversal, com abordagem quantitativa. Apos busca ativa, foram identificadas 124 criancas que se enquadravam nos criterios de inclusao, ou seja, criancas entre 0 e 12 anos de idade. Os dados foram coletados durante visita domiciliaria com maes ou responsaveis pelas criancas, por meio da aplicacao de um questionario. A analise dos dados seguiu os pressupostos da tecnica de Modelos Lineares Generalizados. RESULTADOS Participaram do estudo 102 criancas dependentes de tecnologia, com idade entre 6 meses e 12 anos, das quais 57% eram do sexo masculino. A media de internacoes nao eletivas no ultimo ano, entre as criancas estudadas, foi de 0,71 (±1,29). No modelo final, permaneceram significativamente associadas ao desfecho as seguintes variaveis: idade (OR=0,991; IC95%=0,985-0,997) e numero de dispositivos (OR=0,387; IC95%=0,219-0,684), as quais se configuraram como fatores de protecao e quantidade de medicamentos (OR=1,532; IC95%=1,297-1,810), representando fator de risco para as internacoes nao eletivas em criancas dependentes de tecnologia. CONCLUSAO Os resultados constituem-se em subsidio para se pensar o processo de cuidado as criancas dependentes de tecnologia ao fornecer um modelo explicativo para as internacoes nao eletivas para esta clientela.OBJECTIVE To identify the factors associated with involuntary hospital admissions of technology-dependent children, in the municipality of Ribeirão Preto, São Paulo State, Brazil. METHOD A cross-sectional study, with a quantitative approach. After an active search, 124 children who qualified under the inclusion criteria, that is to say, children from birth to age 12, were identified. Data was collected in home visits to mothers or the people responsible for the children, through the application of a questionnaire. Analysis of the data followed the assumptions of the Generalized Linear Models technique. RESULTS 102 technology-dependent children aged between 6 months and 12 years participated in the study, of whom 57% were male. The average number of involuntary hospital admissions in the previous year among the children studied was 0.71 (±1.29). In the final model the following variables were significantly associated with the outcome: age (OR=0.991; CI95%=0.985-0.997), and the number of devices (OR=0.387; CI95%=0.219-0.684), which were characterized as factors of protection and quantity of medications (OR=1.532; CI95%=1.297-1.810), representing a risk factor for involuntary hospital admissions in technology-dependent children. CONCLUSION The results constitute input data for consideration of the process of care for technology-dependent children by supplying an explanatory model for involuntary hospital admissions for this client group.

Criança dependente de tecnologia e a demanda de cuidado medicamentoso

OBJECTIVE to understand the experience of mothers of technology-dependent children as regards pharmaceutical care. METHOD this was a qualitative, descriptive-exploratory study developed based on open interviews using a structured characterization tool, and applied during home visits to 12 mothers caring for technology-dependent children. The data was submitted to inductive content analysis. RESULTS this study is split into two themes: (i) maternal overload during pharmaceutical care, demonstrating the need to administer drugs continuously and the repercussions of this exhaustive care on the caregivers; (ii) the ease or difficulty of access to the medicines required, showing informal strategies and support networks. CONCLUSION pharmaceutical care is a daily challenge expressed in maternal overload and difficulty accessing the drugs, made worse by failures in the care network and coordinated care.

Care for technology dependent children and their relationship with the health care systems

Objetivo: comprender la experiencia del cuidado a los ninos dependientes de tecnologia, a partir de la vivencia de las madres. Metodo: estudio exploratorio, con aproximacion cualitativa, basado en el referencial teorico de la antropologia medica y del metodo narrativo. Doce madres participaron y como tecnica para obtener las narrativas fue utilizada entrevista abierta en domicilio. Resultados: las narrativas fueron organizadas en tres categorias tematicas: el sistema familiar, identificando las maneras de cuidar, la asociacion entre conocimientos populares y cientificos y la participacion de la red social; el sistema profesional, que discute las relaciones entre profesionales y familia, la hegemonia del modelo biomedico y el papel de la enfermeria; y el sistema popular, presentando las practicas populares de cuidado, tales como espiritualidad y religiosidad. Conclusion: el estudio facilito el desarrollo de un proyecto de cuidado en salud que considera valores morales, simbolicos y creencias de las familias ante el adolecer de un nino dependiente de tecnologia. Los resultados encontrados podran colaborar hacia cambios en el proceso de trabajo en salud, de manera que su fundamentacion no sea norteada solamente por el modelo biomedico, posibilitando que las dimensiones socioculturales sean integradas al movimiento de cuidado en salud.Descriptores: Nino; Familia; Enfermeria Pediatrica; Antropologia Medica; Atencion Domiciliaria de Salud.

Technology-dependent children and the demand for pharmaceutical care

OBJECTIVE to understand the experience of mothers of technology-dependent children as regards pharmaceutical care. METHOD this was a qualitative, descriptive-exploratory study developed based on open interviews using a structured characterization tool, and applied during home visits to 12 mothers caring for technology-dependent children. The data was submitted to inductive content analysis. RESULTS this study is split into two themes: (i) maternal overload during pharmaceutical care, demonstrating the need to administer drugs continuously and the repercussions of this exhaustive care on the caregivers; (ii) the ease or difficulty of access to the medicines required, showing informal strategies and support networks. CONCLUSION pharmaceutical care is a daily challenge expressed in maternal overload and difficulty accessing the drugs, made worse by failures in the care network and coordinated care.

Factores asociados con las hospitalizaciones no electivas en niños dependientes de tecnología

OBJETIVO Identificar os fatores associados a hospitalizacao nao eletiva em criancas dependentes de tecnologia, no municipio de Ribeirao Preto-SP. METODO Estudo transversal, com abordagem quantitativa. Apos busca ativa, foram identificadas 124 criancas que se enquadravam nos criterios de inclusao, ou seja, criancas entre 0 e 12 anos de idade. Os dados foram coletados durante visita domiciliaria com maes ou responsaveis pelas criancas, por meio da aplicacao de um questionario. A analise dos dados seguiu os pressupostos da tecnica de Modelos Lineares Generalizados. RESULTADOS Participaram do estudo 102 criancas dependentes de tecnologia, com idade entre 6 meses e 12 anos, das quais 57% eram do sexo masculino. A media de internacoes nao eletivas no ultimo ano, entre as criancas estudadas, foi de 0,71 (±1,29). No modelo final, permaneceram significativamente associadas ao desfecho as seguintes variaveis: idade (OR=0,991; IC95%=0,985-0,997) e numero de dispositivos (OR=0,387; IC95%=0,219-0,684), as quais se configuraram como fatores de protecao e quantidade de medicamentos (OR=1,532; IC95%=1,297-1,810), representando fator de risco para as internacoes nao eletivas em criancas dependentes de tecnologia. CONCLUSAO Os resultados constituem-se em subsidio para se pensar o processo de cuidado as criancas dependentes de tecnologia ao fornecer um modelo explicativo para as internacoes nao eletivas para esta clientela.OBJECTIVE To identify the factors associated with involuntary hospital admissions of technology-dependent children, in the municipality of Ribeirão Preto, São Paulo State, Brazil. METHOD A cross-sectional study, with a quantitative approach. After an active search, 124 children who qualified under the inclusion criteria, that is to say, children from birth to age 12, were identified. Data was collected in home visits to mothers or the people responsible for the children, through the application of a questionnaire. Analysis of the data followed the assumptions of the Generalized Linear Models technique. RESULTS 102 technology-dependent children aged between 6 months and 12 years participated in the study, of whom 57% were male. The average number of involuntary hospital admissions in the previous year among the children studied was 0.71 (±1.29). In the final model the following variables were significantly associated with the outcome: age (OR=0.991; CI95%=0.985-0.997), and the number of devices (OR=0.387; CI95%=0.219-0.684), which were characterized as factors of protection and quantity of medications (OR=1.532; CI95%=1.297-1.810), representing a risk factor for involuntary hospital admissions in technology-dependent children. CONCLUSION The results constitute input data for consideration of the process of care for technology-dependent children by supplying an explanatory model for involuntary hospital admissions for this client group.

Fatores associados às internações não eletivas em crianças dependentes de tecnologia

OBJETIVO Identificar os fatores associados a hospitalizacao nao eletiva em criancas dependentes de tecnologia, no municipio de Ribeirao Preto-SP. METODO Estudo transversal, com abordagem quantitativa. Apos busca ativa, foram identificadas 124 criancas que se enquadravam nos criterios de inclusao, ou seja, criancas entre 0 e 12 anos de idade. Os dados foram coletados durante visita domiciliaria com maes ou responsaveis pelas criancas, por meio da aplicacao de um questionario. A analise dos dados seguiu os pressupostos da tecnica de Modelos Lineares Generalizados. RESULTADOS Participaram do estudo 102 criancas dependentes de tecnologia, com idade entre 6 meses e 12 anos, das quais 57% eram do sexo masculino. A media de internacoes nao eletivas no ultimo ano, entre as criancas estudadas, foi de 0,71 (±1,29). No modelo final, permaneceram significativamente associadas ao desfecho as seguintes variaveis: idade (OR=0,991; IC95%=0,985-0,997) e numero de dispositivos (OR=0,387; IC95%=0,219-0,684), as quais se configuraram como fatores de protecao e quantidade de medicamentos (OR=1,532; IC95%=1,297-1,810), representando fator de risco para as internacoes nao eletivas em criancas dependentes de tecnologia. CONCLUSAO Os resultados constituem-se em subsidio para se pensar o processo de cuidado as criancas dependentes de tecnologia ao fornecer um modelo explicativo para as internacoes nao eletivas para esta clientela.OBJECTIVE To identify the factors associated with involuntary hospital admissions of technology-dependent children, in the municipality of Ribeirão Preto, São Paulo State, Brazil. METHOD A cross-sectional study, with a quantitative approach. After an active search, 124 children who qualified under the inclusion criteria, that is to say, children from birth to age 12, were identified. Data was collected in home visits to mothers or the people responsible for the children, through the application of a questionnaire. Analysis of the data followed the assumptions of the Generalized Linear Models technique. RESULTS 102 technology-dependent children aged between 6 months and 12 years participated in the study, of whom 57% were male. The average number of involuntary hospital admissions in the previous year among the children studied was 0.71 (±1.29). In the final model the following variables were significantly associated with the outcome: age (OR=0.991; CI95%=0.985-0.997), and the number of devices (OR=0.387; CI95%=0.219-0.684), which were characterized as factors of protection and quantity of medications (OR=1.532; CI95%=1.297-1.810), representing a risk factor for involuntary hospital admissions in technology-dependent children. CONCLUSION The results constitute input data for consideration of the process of care for technology-dependent children by supplying an explanatory model for involuntary hospital admissions for this client group.

Niño dependiente de la tecnología y la demanda de atención médica

OBJECTIVE to understand the experience of mothers of technology-dependent children as regards pharmaceutical care. METHOD this was a qualitative, descriptive-exploratory study developed based on open interviews using a structured characterization tool, and applied during home visits to 12 mothers caring for technology-dependent children. The data was submitted to inductive content analysis. RESULTS this study is split into two themes: (i) maternal overload during pharmaceutical care, demonstrating the need to administer drugs continuously and the repercussions of this exhaustive care on the caregivers; (ii) the ease or difficulty of access to the medicines required, showing informal strategies and support networks. CONCLUSION pharmaceutical care is a daily challenge expressed in maternal overload and difficulty accessing the drugs, made worse by failures in the care network and coordinated care.

O cuidado do filho dependente de tecnologia e suas relações com os sistemas de cuidados em saúde

Objetivo: comprender la experiencia del cuidado a los ninos dependientes de tecnologia, a partir de la vivencia de las madres. Metodo: estudio exploratorio, con aproximacion cualitativa, basado en el referencial teorico de la antropologia medica y del metodo narrativo. Doce madres participaron y como tecnica para obtener las narrativas fue utilizada entrevista abierta en domicilio. Resultados: las narrativas fueron organizadas en tres categorias tematicas: el sistema familiar, identificando las maneras de cuidar, la asociacion entre conocimientos populares y cientificos y la participacion de la red social; el sistema profesional, que discute las relaciones entre profesionales y familia, la hegemonia del modelo biomedico y el papel de la enfermeria; y el sistema popular, presentando las practicas populares de cuidado, tales como espiritualidad y religiosidad. Conclusion: el estudio facilito el desarrollo de un proyecto de cuidado en salud que considera valores morales, simbolicos y creencias de las familias ante el adolecer de un nino dependiente de tecnologia. Los resultados encontrados podran colaborar hacia cambios en el proceso de trabajo en salud, de manera que su fundamentacion no sea norteada solamente por el modelo biomedico, posibilitando que las dimensiones socioculturales sean integradas al movimiento de cuidado en salud.Descriptores: Nino; Familia; Enfermeria Pediatrica; Antropologia Medica; Atencion Domiciliaria de Salud.